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School of Shock : Rotenberg Center Director Matthew Israel Responds

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(See Mother Jones' response)

Without aversive therapy, the alternatives, for many of the students who are referred to JRC, are being heavily drugged with life-shortening and medically dangerous psychotropic medications,3 being warehoused in institutions or jails without receiving any treatment at all, being confined and/or frequently restrained in padded isolation rooms, bouncing in and out of psychiatric hospitals with no improvement, killing or maiming themselves or others with their own self-abusive behaviors or aggressive behaviors, or simply ending up homeless on the streets.

More Detailed Response
Jennifer Gonnerman's article "School of Shock" (Mother Jones, September/October 2007) is a biased and misleading account of the Judge Rotenberg Center ("JRC") that is best characterized as a hatchet job. Ms. Gonnerman persuaded JRC and the Parents of the JRC students to allow her to come to JRC and observe the school and the students by very cleverly and falsely pretending to be sympathetic to the cause of the JRC students and their parents. She asserted that she had read all the letters from the parents on the JRC web site and had cried while reading them. In addition, she represented that the article she was writing would be published in the New York Times Sunday Magazine, a magazine that has a reputation for printing serious, balanced, non-sensational articles. The Times even flew a very artistic photographer and assistant from San Francisco to do the photography. After the article was written it did not appear in the Times. When we asked Ms. Gonnerman why, she said the Times had rejected it because it was not of sufficiently national interest.

Now that we have seen the article, it seems more likely that the Times rejected the article as a biased, unfair and misleading hatchet job. Ms. Gonnerman has shamefully exploited the severely disabled JRC students and their parents. She ignores or glosses over JRC's treatment successes, all the evidence that supports the use of aversives, and the plight of its students before attending JRC. The many court victories won by the JRC parents to preserve the JRC treatment program are a matter of public record and should have been investigated by Mother Jones before the magazine printed Ms. Gonnerman's fallacious article.

This type of a dishonest article could have been written about any topic, no matter how benign. Ms. Gonnerman could have written such a negative article about freshman life at any university, for instance. She could write about the cramped and cluttered conditions of the dormitory, the terrible food, the homesickness, the late nights with little sleep, the incredible long lines at the registrar's office and the bookstore, the overcrowded classrooms, the high tuition, and the exposure to underage drinking. She could also add lies to further sensationalize her story, as she did with the JRC article, by reporting that most students cry themselves to sleep because they are so depressed and many are dangerously gaunt due to the bad food. Ms Gonnerman could make college sound like a horrible, abusive place by not mentioning all the positive aspects of college life—for example, all of the interesting subjects the students learn about, the exposure to talented and fascinating professors and other lecturers, exposure to the arts, learning how to do research and write on a college level, learning about and choosing a career, meeting and getting to know fellow students from around the world, meeting the people who will be friends for life, and learning how to live independently from their parents.

This distorted report of college life is similar to the distorted report of JRC that Ms. Gonnerman created. A fraudulent article about college life is not as harmful as a distorted report on JRC, however, because many people have attended college and will know right away that the article is dishonest. What makes Ms. Gonnerman's article so harmful and exploitive is the fact that only a tiny fraction of the population has had any exposure to severe behavior disorders. In order to understand JRC in its proper context, the following points must be made, none of which were explained in Ms. Gonnerman's article.

  1. It is well documented in scientific articles and in court findings that some special needs children and adolescents have behaviors that are so self-abusive, aggressive or destructive as to be life-threatening and self-maiming. Consider, for example, just one type of behavior—self-abuse. Some special needs children referred to JRC have shown self-abusive behaviors such as banging their head to the point of brain damage, biting off their own fingertips, pulling out their teeth, vomiting and refusing food to the point of starvation, biting a hole through their cheek, biting off part of their own tongue, scratching their heel to the point of blood, bone infection and eventual death, breaking their own arm, cutting off their own earlobe with a scissor, running into moving traffic, punching their eyes causing detached retinas and blindness, pulling out their hair to the point of baldness, swallowing X-Acto knives, and cutting their skin with a knife so often that the skin becomes too tough to suture.
  2. Children with such very severe problem behaviors usually cannot be successfully educated in public schools. When a public school encounters such a student, the school will refer the student to a psychiatric hospital or to a nonpublic, special needs school where the student is often not effectively treated. Instead, the student is usually drugged into a stupor. If students are given high enough dosages of psychotropic drugs, these drugs will sedate them so much that the students are incapable of hurting themselves or anyone else—but such students are also incapable of participating in education or even communicating with their family. These drugs also have many debilitating side-effects including kidney damage, liver damage, tremors, obesity, and lock jaw and many effects are permanent. Unfortunately many so-called experts in this field will refer to this drug stupefaction as a treatment success.

    Other so-called effective treatments for severe behavior disorders that JRC has seen in the histories of newly admitted students include lobotomy, removal of teeth (for severe biters), constant seclusion, constant mechanical restraint, and many others that experts refer to as "more humane and effective" alternatives to JRC's aversive therapy procedures. The lack of effective alternatives and the sheer cruelty of drugging a child into a near coma is why parents turn to a non-public, special needs school such as the Judge Rotenberg Educational Center that is specially equipped to manage and educate the student, and has a proven track record of saving students from the ravages of constant heavy sedation. A real journalist would have mentioned these facts and, more importantly, investigated why the anti-aversive experts are hiding the fact that there are no effective treatment alternatives for severe behavior disorders. A real journalist would have asked why the JRC students have, prior to coming to JRC, spent so many wasted months or years sedated in a psychiatric ward and why their parents had to fight to get their child out of a psychiatric ward and into a special needs school such as JRC. Finally, a real journalist would have investigated why schools and clinicians fear being blackballed if they use, or admit to using aversives. As a result of this fear, children are forced to suffer with untreated painful behavior disorders, to receive no education and to have no social life of any kind.
  3. Most nonpublic, special needs schools that try to educate and treat such students use rewards, education and positive-only procedures. Unfortunately, studies show that positive-only treatment procedures are effective in only 6o percent of the cases at most and cannot handle the most severe behavior problems.
  4. Actually, although most nonpublic, special needs schools pride themselves on using "positive-only" treatment procedures, the truth is that such programs really do use aversives without calling them by that name. In other words, such schools use hidden aversives such as these:
    • Five to eight staff members wrestle the student to the floor, each time he/she is aggressive, and hold him/her there until he/she stops struggling. The procedure could last an hour or more. This is a procedure that JRC is able to eliminate entirely whenever it is able to use effective aversives such as the two-second skin-shock procedure.
    • If a student is aggressive, staff members may grab the student and take him/her, against his/her will, into a "time-out" isolation room and leave him/her there for a specified period of time. This is a procedure that JRC never uses.
    • Staff members may hold the student tightly (manual restraint) each time he/she is aggressive and thereby prevent the student from doing anything at all.
    • Staff members may grab the student forcefully by the shoulder or arm and squeeze hard while giving the student a so-called "physical prompt" to engage in a certain action.
    • Staff members may force the student to engage in some physical action against the student's will over and over. This is called "overcorrection" or "positive practice" but it will only work to decelerate a behavior if it done in a manner that is aversive.
  5. JRC does not use hidden aversives such as these preferring, instead, the more honest course of using fully-disclosed and more effective aversives such as skin-shock.
  6. The typical nonpublic, special needs school will, in addition to the use of such hidden aversives, have a psychiatrist prescribe large quantities and a wide variety of psychotropic drugs to students with severe behavior problems. If a student is given enough drugs, he or she will essentially be put into a drug-induced stupor for much or all of the day. Such medication can be so drugging that the student may not be able to recognize his own parents and might fall face-first into his food at mealtime. Unfortunately, for some students even large quantities of drugs are insufficient to control their aggressive or self-abusive behaviors. By contrast, JRC's policy is to avoid totally, or at least minimize, the use of psychotropic medication.
  7. For some students the typical nonpublic special needs school may find that if the school places no educational or behavioral demands on the student, the student will refrain from aggression, self-abuse or destructive behaviors. If this is the case, such a school may choose to solve the problem by essentially "warehousing" the student—i.e., keeping the student safe and adequately fed, but not undertaking any serious attempt to educate the student or change the student's behaviors.
  8. In extreme circumstances, the typical nonpublic, special needs school might do things such as call in the police to handcuff the student when he or she is aggressive, or send the student to a psychiatric hospital. JRC never calls in the police to deal with aggressive or otherwise disruptive students and JRC is an effective alternative to psychiatric hospitals.
  9. In the case of certain students with case-hardened problem behaviors, the school may try all of the above procedures—positive-only procedures, hidden aversives, seclusion, restraint, drugs, warehousing, calling in the police and sending the student to a psychiatric hospital—and may find that none of them are successful in controlling the student's problem behavior. In addition, the school may at some point simply tire of seeing the student continually harm the school's staff members, other students, and property. At that point many such schools will expel the student. Sometimes, however, some students are aggressive even to their own parents. Consequently, at that point the parents, may even be unable or afraid to allow the students to come home. This leaves the parent with essentially no options. Such students are then left to live in the street, to languish in homeless shelters, to bounce in and out of psychiatric hospitals again or to commit some offense and be jailed. These students, i.e., those who are expelled from such schools that use positive-only treatment procedures, are the ones that are referred to JRC, where they finally can receive effective treatment.
  10. Before JRC uses aversives with any student, only positive and educative procedures are employed for an average of 11 months to try to change serious problematic behaviors. The positive procedures that JRC employs include many rewarding and educational procedures. The extent and variety of the reward systems at JRC will not be found at any other program. They include the following:
    • an all school arcade-type reward lounge
    • a retail store in which students can purchase desired items for themselves or others
    • a reward corner in many of the classrooms in which the student can relax, watch tv, play games, etc.
    • a reward box in many classrooms containing items that students can earn through their behaviors
    • a reward afternoon once per week that features a barbecue and games; (6) frequent field trips used as rewards
    • electronic game devices in each bedroom
    • opportunities to order food out from local restaurants
    • internet usage
    • a student discussion board
    • various sports activities, etc.
  11. JRC's positive and educational procedures alone are currently effective with about half of its school-age students. For the other half, however, positive and educational procedures need to be supplemented with the use of a brief aversive. The most effective aversive available is a two-second, harmless shock to the surface of the skin, typically of the arm or leg. It is extremely effective. For example, in treating aggression, we are able to accomplish a 95 percent reduction in 96 percent of the cases, within a matter of weeks. As a result, students can begin to receive an education and benefit from positive programming for the first time in their lives. Unlike drugs, the treatment has no significant side effects and the treatment can be discontinued for many students as their behavior improves. Parents and students describe the improvement as life-saving.
  12. There are many safeguards at JRC to make sure that the skin-shock procedure is used carefully, professionally and properly. They include prior parental consent, prior individualized court authorization (the judge appoints an attorney to represent the child's interests in this process), prior approval by a Human Rights Committee and a Peer Review Committee, clearance from a physician and a psychiatrist to insure that there are no medical contraindications, etc. More information about these safeguards may be found on JRC's website.
  13. Only a minority (43 percent) of JRC's school-age students are currently receiving skin shock treatment. And for those who are being treated with skin-shock, the average student receives only one application per week. More information about the frequency with which skin-shock is used at JRC may be found on JRC's website.
  14. To summarize:
    • JRC treats severe problem behaviors of special needs children and adults who have failed in every other program that has been tried with them.
    • Programs that use "positive-only" treatment procedures expel students with really severe behavior problems and these students are often then referred to JRC.
    • JRC removes students from psychotropic drugs and applies a highly consistent behavioral program of positive rewards and educational procedures for an average of 11 months before considering the use of any aversive.
    • If rewards and educational procedures alone prove to be insufficiently effective, they are supplemented, when necessary, with a two-second shock to the surface of the skin, used as a corrective consequence for the problem behavior.
    • Before employing skin-shock, JRC obtains consent from the child's parent and individualized approval from a probate court judge, a physician, a psychiatrist, a peer review committee and a human rights committee.
    • JRC's skin-shock procedure is extremely effective, has no significant side effects and can be removed entirely in many cases as the student's behavior improves
    • JRC's positive behavioral program is so effective that the skin shock procedure is currently being used for only 43 percent of JRC's school-age students
    • JRC's treatment enables its students to do the following: stop taking harmful psychotropic drugs; avoid restraint, seclusion, warehousing and takedowns; avoid having to be placed in psychiatric hospitals or arrested by police for aggression and other destructive behaviors; start learning in school for the first time in their lives; avoid death or self-maiming by receiving effective and rapid treatment of self-abusive behaviors; have hope and optimism for their future where previous there was none; and enjoy the company of their parents and family for the first time in years.


 

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I think 'modern psychiatry' is an evolving field that's been developed to try to basically medicate the human condition into submission and social conformity. I think, if your kid needs electro-shock therapy, get him/her a job apprenticing as an auto mechanic. The first time they touch that hot ignition coil, well, there ya go, and you didn't even have to sign one of your kidneys over to an HMO! LOL DEVO said it, years ago, 'someday we'll only be able to sit in our dens, and slip in our cassettes'. You can dole out the happy pills all you want, but living in a giant diesel-powered Habitrail basically sucks. That's not mental illness, that's 'progress' on the march, there.... Don't feed your kids drugs and pills, get them involved in a hobby, job skill, explore Patagonia, something they can DO. We're doers, not sitters, sit around long enough, and you'll get sick, both mentally, and physically. Don't dope the kids, get em out the door and get em busy, get em involved in something...tell the quacks to get day-jobs...
Posted by:BertOctober 6, 2007 9:50:14 AMRespond ^
Dr. Israel is right about the importance of limiting discussion to the benefits and risks of treatment. But in my opinion, research establishing any possible benefits or risks of "skin shock" doesn't exist. The JRC website refers parents to so-called "research," apparently meant to impress those not familiar with what good research entails by the massive size of JRC's "data." But a vital part of real research is passing through the peer review process, with publication in a professional journal. Not bothering with this step is a huge red flag that something is amiss. The value of good research is so we don't rely on our personal impressions of what work or not. Frankly, all people are to some degree prone to fool themselves. This may be particularly true of parents who want desperately to believe they are making the best decisions for their children and look hard for signs of improvement that may not be there -- or may be explained by other factors, such as children simply getting older. What we do know is that there is good and convincing research for the value of positive reinforcements in dealing with difficult behaviors. At best, skin shock can only be considered an experimental treatment. (I suspect, however, that no human subject review board would ever allow actual experimentation with skin shock on children or adults.) But as experimental, JRC is essentially using children as guinea pigs and violating research ethics by charging for "treatment". People with wild hair theories -- and adherents who swear by them -- will always be among us. What is truly disturbing is that legislators and state authorities haven't put an end to this torture of helpless children long ago.
Posted by:ReaderOctober 6, 2007 10:25:31 AMRespond ^
It is hard to put into words the atrocities that take place at the Judge Rotenberg Center. Everything is treated as a "behavior", shocks are the answer for everything. So, it doesn't matter if a behavior is symptomatic of a disorder, or developmentally appropriate, children are shocked nonetheless. Children with the developmental age of a toddler are shocked for soiling themselves. Ironically, this is called "having an inappropriate". Aphasic children are shocked for having the symptom of repeating themselves, a common aphasic tendency. Dr. Israel convinces people that this is a sign of aggression, and labels it as "nagging". He absolutely treats these children like guinea pigs, and seems to perceive himself as above the laws of basic human decency. One girl was shocked for the so-called behavior of calling staff "Mommy". He claims the use of shock is limited to severe aggression, and that is a lie. You shock children for, say, "having an untidy appearance" and expect people to believe you are reserving this treatment for self-abusive or violent behavior. It's a blatant lie. I hope people can see through the lies, and do what needs to be done to stop this sick man.
Posted by:SarahOctober 6, 2007 4:08:41 PMRespond ^
I took Psychology classes in college. The professor lectured on theories like Positive Reinforcements. Punishments were not used. Pain was not used. The cause and effect were written in textbooks for positive reinforcements vs pain stimulants. Have the proven theories changed to punishment and pain in the medical field? Is this torture? What is the child learning. Will he go to Harvard? Is this torture?
Posted by:Sheryl SkoglundOctober 7, 2007 9:00:57 AMRespond ^
Withhold breakfast and then have their teachers zap them when their blood sugar gets low. Make the teachers so scared to stand up for a student that they will zap any student without question when some anonymous voice on the phone direct directs them to do so. Take high functionling children who are given the choice of jail or aversive treatments at JRC. How is this constitutional? Avoid all peer review. Why does it continue? Lobbying. How will it be stopped? Lobbying. Why is this in MJ rather than being dealt with by the APA? If you know a phycologist, suggest they get their professional societies get involved.
Posted by:JackieOctober 8, 2007 10:37:32 AMRespond ^
RE: MATTHEW ISRAEL RESPONSE In your response to Ms. Gonnerman's "School of Shock" article you mention that Christian Scientists view medical procedures as wrong with a capital "W." Actually, Christian Scientists have the option to choose whatever healthcare system they feel will best meet their needs. It's more a matter of opting for a system they've found practical and reliable--Christian Science--than taking a stance against another form of treatment. And of course Christian Scientists, like others in the healing profession, want to choose the option that is most effective and comfortable for the patient and causes the least amount of suffering. I've found this method to be Christian Science. Russ Gerber Committee on Publication Media Manager First Church of Christ, Scientist Boston, Massachusetts 02115
Posted by:Russ GerberOctober 9, 2007 8:57:59 AMRespond ^
I agree with Dr Israel and what he does for the few children with such a severe form of autism. JRC is not for all children with this affliction, only the ones who have tried all other treatment options with no success. What they do at JRC helps greatly improve the quality of life for those who need it. For those who say it must be bad because it's the only school in the country to use G.E.D therapy is not looking at the whole picture. Would you rather the number of children with this severe form of autism increase to support 2, 3 or 100 schools like JRC, then it would be acceptable treatment? I’m thankful we only need one school like JRC at this time.
Posted by:Brian DavisOctober 9, 2007 9:22:34 PMRespond ^
RESPONSE TO THE MOTHER JONES EDITORS…………………………………………………………… ……………………………………………………………………………… ……………………………………………………………………………………. [This is Part 1 of a 2-part document. For part 2, see the following post. For a properly formatted version of the entire document, please see http://www.judgerc.org/ResponsetoMJEditorsReply.pdf ] …………………………………………………………………………………………… ……………………………………………………………………………………………………………………………………. Mother Jones editors Monika Bauerlein and Clara Jeffery, in their reply to my response to Jennifer Gonnerman’s “School of Shock” article, rely primarily on a report issued by the New York State Department of Education (“NYSED”) on June 9, 2006 as to what is true about the Judge Rotenberg Center (“JRC”). Unfortunately they have placed their reliance on a faulty report that is filled with inaccuracies and that was commissioned by the New York State Education Department in a hasty effort to justify NYSED’s (so far) failed attempt to get the New York Board of Regents to remove JRC from its list of approved schools and to ban, immediately and completely, the use of aversives with New York students. This attempt was frustrated due largely to the persuasive letters from JRC’s parents (see http://www.judgerc.org/parentletters.html.) ……………………………………………………………………………… ……………………………………………………………………………… ………………………………………………………………….MOTHER JONES’RELIANCE ON A BIASED AND INACCURATE JUNE 9, 2006 NYSED REPORT …………………………………………………………………………………………… ……………………………………………………………………………………………………………………………………. In September of 2005, members of NYSED’s own education staff visited JRC as part of their normal periodic review process and wrote a very positive and favorable review of JRC (see http://www.judgerc.org/NYSEDNov05report.pdf) that was issued in November 2005. The visiting team concluded in that report that JRC was doing an excellent job treating and educating New York students. …………………………………………………………………………………………… …………………………………………………………………………………………………………………………………….On March 20, 2006, however, NYSED urged the Board of Regents to reverse its 30-years of approval and use of JRC and to take an anti-aversive position, apparently as a panic reaction to negative media attention about one frivolous claim by a former New York parent. At that point, NYSED’s own November 2005 report proved to be a significant embarrassment. …………………………………………………………………………………………… …………………………………………………………………………………………………………………………………….In order to generate a result that would be different from the November, 2005 review, NYSED conducted two new special visits to JRC, in April and May 2006 that were not part of their normal review process. This time NYSED invited, as key members of the new review team, three outside psychologist consultants. Unfortunately for JRC, they were also individuals who had already taken a strong philosophically-based stand against the use of aversives, who had never themselves used aversives, and who, when they visited JRC, refused to receive an explanatory tour of the program or even discuss any of their major concerns with JRC’s clinical staff. This new review team visited JRC for parts of only five days. The three psychologist members visited for only 1 ½ days (two of them) or 2 ½ days (the third); however, they claimed to be informed and qualified to make conclusions about the quality and efficiency of the treatment plans and IEPs of over 140 New York students who suffered from the severest forms of behavior disorders in New York State. JRC complained to NYSED at the time of the visit that the team was obviously biased (see http://www.judgerc.org/LettertoMills51906.pdf ), but to no avail. …………………………………………………………………………………………… …………………………………………………………………………………………………………………………………….JRC has discussed the bias of the June 9, 2006 NYSED Report in detail and has responded to every single inaccuracy at http://www.judgerc.org/ReplytoJuneReport.pdf. We provided Ms. Gonnerman with a copy of that response but it is not clear whether she read it before writing her article. We also pointed out to her that three Massachusetts agencies, who visited JRC to investigate the charges in the June 9, 2006 NYSED Report, failed to confirm any of the major charges (see http://www.judgerc.org/ThreeAgencies.pdf.) …………………………………………………………………………………………… …………………………………………………………………………………………………………………………………….In hiring a biased, anti-aversive group of consultants to do its June 9, 2006 report, NYSED made the same mistake that two previous state agencies (Massachusetts Office for Children in 1986 and Massachusetts Department of Mental Retardation in 1993) had made. In both cases, this biased selection process came out during a trial. In both cases the judge found that the agency had acted in bad faith in commissioning the review by a consultant group whose members had an anti-aversives bias and whose bias was known to the agency when they were selected. In both cases the judge ruled in favor of the JRC parents who were seeking to preserve the availability of JRC’s treatment for their children. NYSED’s June 12, 2006 report is currently being challenged, in part for these same reasons, in a federal lawsuit that the current JRC parents have brought against NYSED. …………………………………………………………………………………………… …………………………………………………………………………………………………………………………………….USE OF REWARDS/SKIN SHOCK THERAPY FOR OTHER THAN SELF-ABUSIVE BEHAVIORS …………………………………………………………………………………………… …………………………………………………………………………………………………………………………………….Ms. Bauerline and Jeffery (“the editors”) state that “the use of skin shock is not restricted to such ‘low functioning’ students. Nowhere in my reply did I claim that it is so restricted at JRC. I stated that higher functioning former as well as current students are often eloquent in crediting reward/skin shock treatment with their (sometimes life-saving) recovery and that its use with these students is parallel to the fact that normal adults can request aversive therapy to treat problems such as excessive smoking, gambling and eating. …………………………………………………………………………………………… …………………………………………………………………………………………………………………………………….The editors quote from the NYSED Report to accuse JRC of treating behaviors that are not overtly aggressive, self-abusive or destructive. I answered this in my response where I pointed out that it is often important to treat the earliest forms, the partially-treated altered forms, and the antecedents of problem behaviors, even if those behaviors might seem, when viewed by themselves and out of their total treatment context, to be harmless. Certain behavior problems, if not treated aggressively at their earliest possible stage, can grow quickly into severely problematic forms. A similar approach is taken in the treatment of diseases such as cancer where it is recognized that treatment should be applied at the earliest possible stage. …………………………………………………………………………………………… …………………………………………………………………………………………………………………………………….THE DEATH, FROM NATURAL CAUSES, OF A STUDENT NOT IN JRC’S CARE. …………………………………………………………………………………………… …………………………………………………………………………………………………………………………………….The student in question, at the time of his death, was in the care of Behavior Research Institute of California, and not in the care of Behavior Research Institute, the forerunner of JRC. Behavior Research Institute of California was never a branch of JRC and never had any formal connection with JRC. Furthermore, an inquest jury found that the student died from natural causes that had nothing to do with aversives or with his treatment. …………………………………………………………………………………………… ……………………………………………………………………………………………………………………………………. DR. IWATA’S HOSTILE VISIT TO JRC 12 YEARS AGO. …………………………………………………………………………………………… ……………………………………………………………………………………………………………………………………. In 1995 Dr. Iwata visited JRC briefly when he was hired as a consultant by the Massachusetts Department of Mental Retardation as part of that Department’s effort to close JRC –an effort that ultimately failed. When I wrote the first draft of my reply, I had forgotten that visit which took place when I was not present at JRC. The version of my reply that currently appears on the JRC website (see http://www.judgerc.org/ResponsetoGonnermanArticle.pdf.) acknowledges his visit and has done so since September 11.……………………………………………………………………… ……………………………………………………………………………… ………………………………………………………………………….INACCURATE REPORTING OF JRC’S POLICY ON STUDENT SOCIALIZING, AND MISCHARACTERIZING A PROCEDURE AS “ISOLATION.” …………………………………………………………………………………………… …………………………………………………………………………………………………………………………………….The editors quote me as saying that opportunities to socialize at JRC for some students must be earned. They also note that in my reply I stated that there were many opportunities for students to socialize other than when they are in the Big Reward Store. The editors’ implication is that these two statements are in conflict. They are not. It is true that many students must earn access to field trips, visits to the Big Reward Store, participation in the weekly barbecue, visits to the Contract Store, opportunities to enjoy the playground, and other opportunities for free and leisure time activities. Once they have earned access to these opportunities, however, they are free to socialize normally while they are enjoying the activity. …………………………………………………………………………………………… ……………………………………………………………………………………………………………………………………. (continued on next post)
Posted by:Matthew L. IsraelOctober 12, 2007 8:48:42 AMRespond ^
RESPONSE TO THE MOTHER JONES EDITORS…………………………………………………………… ……………………………………………………………………………… ……………………………………………………………………………………. [This is Part 2 of a 2-part document. For part 1, see the following post. For a properly formatted version of the entire document, please see http://www.judgerc.org/ResponsetoMJEditorsReply.pdf ] ……………………………………………………………………………… ……………………………………………………………………………… ………………………………………………………………….(Continued from previous post) The authors of the New York Report asserted that they did not see a lot of students socializing. This is largely because they chose to observe the students in the classroom setting where they are expected to study rather than socialize. Had they observed the students on field trips, in the residences, on the playground, etc., they would have had a very different report. The authors of the New York Report were consultants with an anti-aversive philosophy who were sent to do a negative report of JRC. It is not surprising, therefore, that they tried to characterize the fact that students were busily engaged in their academic work in a negative way—i.e., that they were not socializing sufficiently. …………………………………………………………………………………………… …………………………………………………………………………………………………………………………………….The editors try to justify their sensationalized use of the term “isolation” on the front page of Mother Jones in two ways. First, they quote me as stating that JRC students must earn the opportunity to socialize. But earning the opportunity to socialize clearly does not mean that one is in isolation at other times, prior to earning that opportunity. Students who have not earned such opportunities may simply be in their classroom or residence with ten other students. Second, the editors correctly note that disruptive students are sometime shifted to conference rooms where they do their work with a staff member present in the room. But if a staff member or teacher is present in a conference room, supervising the student as he/she does assigned academic work, in what sense can this properly be called “isolation?” …………………………………………………………………………………………… ……………………………………………………………………………………………………………………………………. USE OF MINI-MEALS TO TEACH NEW SKILLS …………………………………………………………………………………………… …………………………………………………………………………………………………………………………………….The use of mini-meals to reward desired behaviors is a well-accepted procedure in applied behavior analysis. For example in teaching new skills to an autistic child, it is desirable to be able to reward the student for imitating speech sounds or displaying other skills with a small portion of food. In order for these food portions to be effective as rewards it is important that the student not be satiated with food when this teaching is conducted. …………………………………………………………………………………………… …………………………………………………………………………………………………………………………………….In order for JRC to be able to use mini-meal rewards in this way or as rewards for behavioral contracts in which student refrains from problem behaviors for a pre-set period of time, JRC must obtain approval from a Probate Court for this aspect of the treatment program. Numerous safeguard measures are taken to make sure that the student enjoys good nutrition and maintains good health and weight when such procedures are used. To characterize this court-authorized use of mini-meal rewards as “food deprivation” is to sensationalize and falsely portray this procedure as an extreme disciplinary punishment rather than as the carefully monitored and medically supervised motivating program that it really is. …………………………………………………………………………………………… …………………………………………………………………………………………………………………………………….USE OF OTHER THERAPIES BEFORE ADDING SKIN-SHOCK TO A STUDENT’S POSITIVE-ONLY PROGRAM. …………………………………………………………………………………………… …………………………………………………………………………………………………………………………………….The editors quote me correctly as stating that the average student, with whom skin shock is employed at JRC, is first tried on a program that consists only of positive rewards and educational procedures for an average of eleven months before JRC considers adding skin shock to the student’s program. The editors then note, again correctly, that JRC might sometime decide, based on the severity of a prospective student’s problems, that it is very likely that JRC will need to employ supplementary aversives shortly after the student arrives. These two statements are not in conflict. In some cases, it might be two or three years before the need to supplement with aversives is recognized. In other cases we might recognize the need much more quickly. The average amount of time before aversives are supplemented is eleven months. In either case—whether JRC’s clinicians recognize the need shortly after admission or only after several years of trying positive-only procedures—JRC must obtain permission from the parent (who can withdraw permission at any time), a probate court, a physician, a psychiatrist, a Human Rights Committee and a Peer Review Committee before aversives can be employed. ……………………………………………………………………………… ……………………………………………………………………………… ………………………………………………………………….SAFEGUARDS …………………………………………………………………………………………… …………………………………………………………………………………………………………………………………….The editors denigrate the safeguards that JRC has put in place by asserting that they “are apparently required as the result of JRC’s settlement with the State of Massachusetts.” The Settlement Agreement we entered with Massachusetts requires us to go to court for the use of any aversives. It does not require the pre-approval by a physician, psychiatrist, Human Rights Committee, Peer Review Committee, and parent. And even if it did, isn’t the important thing that the safeguards are in place and working rather than that they might be required by regulation or court settlement? ……………………………………………………………………………… ……………………………………………………………………………… ………………………………………………………………….Regarding the statement from the NYSED Report questioning JRC’s level of professional monitoring, the statement quoted was made without factual basis. JRC employs fourteen Doctoral and Masters level clinicians, (in addition to myself,) each of whom oversees the treatment of the 5-20 students in their case load. Each has been trained in behavioral psychology, some are licensed psychologists and many are Board Certified Behavior Analysts. ……………………………………………………………………………… ……………………………………………………………………………… ………………………………………………………………….FADING OUT REWARDS/SKIN-SHOCK TREATMENT …………………………………………………………………………………………… …………………………………………………………………………………………………………………………………….The editors quote correct statistics of students currently at JRC; however, they neglect to inform the reader that most of the students who have progressed to the point where they no longer need skin shock have also graduated from JRC and therefore are not included in the statistics that they cite. This criticism is like criticizing a hospital because it does not have many patients who no longer need to be in the hospital. Those whom the hospital served successfully have already left the hospital. Those who are still in the hospital are obviously still there because they continue to need its services. JRC is essentially a behavior hospital. …………………………………………………………………………………………… …………………………………………………………………………………………………………………………………….As for the fact that some students do need the continued availability of skin shock on a more than temporary basis, this is just an unfortunate fact of life. Some impairments require a “prosthetic” type of treatment that may be needed on a long-term basis. This is true, for example, for persons who have require an artificial limb, need eyeglasses to correct their vision, need a hearing aid, need insulin for diabetes treatment or require the long-term use of psychiatric medication. ……………………………………………………………………………… ……………………………………………………………………………… ………………………………………………………………….OMITTED PORTION OF MY RESPONSE TO “SCHOOL OF SHOCK.” …………………………………………………………………………………………… …………………………………………………………………………………………………………………………………….In publishing, online, my reply to the School of Shock article, the editors omitted the following email which appeared at the very end of my reply: …………………………………………………………………………………………… ……………………………………………………………………………………………………………………………………. -----Original Message----- From: website@judgerc.org [mailto:website@judgerc.org] Sent: Thursday, September 27, 2007 3:53 PM……………………………………………………………………………………… …………………………………………………………………………………………………………………………………………. To: Burt, Sarah………………………………………………………………… ……………………………………………………………………………… ………………………………………………………………………………. Subject: Comments Submitted by Prefer to be Anonymous……………………………………………………… ……………………………………………………………………………… ………………………………………………………………………………………….Comments: ……………………………………………………………………………… ……………………………………………………………………………… ………………………………………………………………….Dear Judge Rotenberg Center, …………………………………………………………………………………………… …………………………………………………………………………………………………………………………………….I am glad that you exist. I became aware of your organization from an article critical of your organization forwarded to me by my son. The author's intent in this "Mother Jones" article was quite clear but I'm afraid it had the opposite effect; I'm a parent of an autistic child and I know things about children like these that most people just don't understand. ……………………………………………………………………………… ……………………………………………………………………………… ………………………………………………………………….Please let Dr. Israel know that even if his work isn't understood and appreciated by everyone, those of us who have been there understand. Submitted by: Prefer to be Anonymous Title: Agency: N/A Interested in: Learned of JRC from: News article Address: PO Box 0 City: Wichita State: KS Zip Code: 67202
Posted by:Matthew L. IsraelOctober 12, 2007 8:50:04 AMRespond ^
Geez, people also used to believe throwing disabled and disturbed people into a snake pit was effective treatment. How far have we NOT come from those days? / Unfortunately for children today, politicians and officials are prone to kowtow to small groups of vocal parents who are utterly devoted to useless and even dangerous practices. / "Skin Shock" would, in my opinion, constitute a violation of the United Nations Convention on Torture. Might that give another country good reason to invade the USA? Alas, I can imagine that many of the children -- those receiving electric shocks and being abused nutritionally -- hope everyday for someone to save them.
Posted by:Linda Rosa, RNOctober 12, 2007 11:25:38 AMRespond ^
On Tuesday of this week I submitted by email my responses to the Editors' Reply to my original response to the "School of Shock" article. I asked the editors to publish these further responses in this online version of Mother Jones, in the spirit of giving both sides of the issues and of not engaging in censorship. As of this morning, three days letter, the editors had chosen not to honor my request. For that reason I have posted my responses in this Comment section (See the two long posts from me just preceding the post before this one.)
Posted by:Matthew L. IsraelOctober 12, 2007 3:31:57 PMRespond ^
Dr Israel, of course the editors won’t comply sensationalism sells papers not logic.
Posted by:Brian D.October 18, 2007 11:58:32 PMRespond ^
I have identical twin brothers with severe life-threatening behaviors extreme and rare even for persons on the autism spectrum. I have been practicing psychiatry over ten years and I specialize in persons on the autism spectrum. Yet, I have only seen a handful of cases which can be classified as severe as my brothers. My daughter is also autistic. She is five, nonverbal but I am thankful she does not have the behaviors which my brothers exhibited, although I am in tremendous debt paying $90,000 for one year tuition for her school, plus speech, occupational and physical therapy. For her first month of school I had to drive her every morning and start my job at 11 AM, leave at 7:30 PM, get home at 9PM and do the same the next day. Thank goodness my extended family has been supportive. Her school does not employ the use of aversives and she does not need it. I did try to get her into a public school which was appropriate for her, but they only accepted seven children from all of New York City last year and my daughter ended up on the lottery wait list. When I attended the lottery there were many parents in tears. If NYSED (New York State Education Department) truly cared about these children there would be an appropriate placement for each and every child. Public school programs here many times are not providing the services which are in the child's federally mandated Individual Education Plan. New York City public school autism programs are also using methods with no scientific evidence such as the Miller method and the Option method when there are methods with scientific evidence. Using an invalidated method when there are validated methods to treat a condition is unethical. I do not understand how people can take NYSED reports seriously when many of their own public schools are not in order. Regarding my brothers, one twin has lived at JRC for almost twenty years. Before arriving there he banged his head so severely he had to have surgery to close it. He would bang his head suddenly, even during the night without a clear reason. He was in a hospital for over five months, and my parents were told his insurance was running out and they would have to flip the bill. He had no education in the hospital because he attacked the teacher. He also became very sick from the medications used to try to control his behavior. He had obesity, drooling, sedation and tardive dyskinesia. At one point he could have died from neuroleptic malignant syndrome from his haldol. The medications did not control his behavior. In the hospital he had one to one at all hours and he still needed repeat suturing for repeated head banging. The board of education requested my parents waive my brother's right to an education. They said there was no place which would take him. My mother found out through her internist about the Judge Rotenberg Center. We got him transferred within a few days of the insurance running out. He was taken off all his medications there although he still has permanent tardive dyskinesia. He is happy there and states he wants to "stay at JRC forever." He enjoys the reward store and going on trips such as the zoo, museums and special olympics. I am calm to put him in the back seat of my car with my small children and take him out. (Prior to arrival at JRC he would attack my mother while driving). He does receive skin shock on average once to twice a month. At times he will actually ask to wear the device because he knows it gives him boundaries. Most of all, head banging is a thing of the past. I will now discuss my other twin brother. He once did very well. He had full time job for two and a half years and traveled independently. He moved into a group home during this time. One day another worker was teasing him and repeatedly was telling him he had to work until 5 PM when my brother knew that he leaves at 4 PM. This was a fixed routine for him. My brother became so agitated he grabbed the other worker's butcher knife. I understand that my brother had to be fired. Since then, he has gone down hill completely. He started to develop a compulsion regarding fires and tried to place himself and someone else on fire. He has run into traffic. He also was aggressive, tried to punch and choke others for a minor problem, i.e. a staple being out of place on a chair. He was placed on about fifteen different psychotropic medications in various combinations. He developed obesity, sedation, hypotension, tardive dyskinesia and generalized seizures, once on a subway platform during a snowstorm. The medication has not been helping his symptoms. He has been hospitalized since July. His group home understandably is unwilling to take him back and as New York does not want to fund Judge Rotenberg Center for him (and he cannot live with his closest relative) he has nowhere to go. I think even the Judge Rotenberg Center positive behavior program may be sufficient for him as there is consistency there. He did well in his day school when he was younger. Unfortunately in New York State the agencies funded to treat persons over the age of 21 do not have direct care staff appropriately trained in the principles of applied behavior analysis and consistency of a behavior plan is a problem in the agencies. My brother never required medication when he was in his structured and consistent day school program before he was 21 or when he had his job. My parents tried different approaches to my brothers, even took them to a doctor in Europe for a treatment. My grandfather spent about half his life savings to finance the trip. There is no medication which has shown to be 100% effective to control behavior like my brothers have. Positive behavior interventions are not sufficiently effective in all cases to suppress problem behaviors and there is a meta-analysis in 1999 that clearly shows this. As far as other methods proposed such as TEACCH and sensory integration, I think they can be helpful for some symptoms but they have never been shown to sufficiently treat the types of behaviors my brothers' have. In fact a small study on sensory integration resulted in an 11% decrease in the frequency of self-stimulatory behaviors. This does not cut it for a life threatening condition. However, there have been 111 peer reviewed articles on behavioral skin shock. I received the New York Medical College Award for Academic Excellence for my research on medication and behavioral skin shock to control life-threatening behaviors in persons with mental retardation or autism. Medication can sometimes be helpful but results are mild to moderate to decrease frequency of behavior. Behavioral skin shock gets on average an almost 100% decrease in frequency of behavior in subjects. My brother would be dead without this therapy and my other brother is dying. To have a family member with special needs is stress enough. To be in financial debt is more stress and to have to deal with life threatening behaviors is even more stressful. I find the criticism directed toward the Judge Rotenberg Center to be further stressful. I feel my family is being judged and marginalized after all we have already been through. I would also like to state that the reporter Ms. Gonnerman informed me that she was a reporter for the New York Times prior to questioning me although I later found out she was not an employee of the New York Times.
Posted by:Ilana Slaff, M.D.October 21, 2007 1:52:35 PMRespond ^
"The louder he talked of his honor, the faster we counted our spoons." - Ralph Waldo Emerson
Posted by:KJ ScottOctober 24, 2007 11:14:37 AMRespond ^
I have studied Psychology and I am well aware that there are very serious long term consequences of using adversive behavioral therapies. These children will have severe post traumatic stress disorders for the rest of thier lives. You can not reverse the intese psychological harm that you are inflicting.
Posted by:PattiNovember 1, 2007 2:20:46 PMRespond ^
Dear Bert, Clearly you have never met an unmedicated mentally ill person. You have no clue what you are talking about.
Posted by:PattiNovember 1, 2007 2:28:53 PMRespond ^
I find it disturbing that these children are dressed in ties. That is simply not "normal."
Posted by:PattiNovember 1, 2007 2:30:51 PMRespond ^
Perhaps someone should call cps for the kids in lock down, because they're certainly being abused...

I wasn't aware having an 'untidy appearance' necessitated electric shocks.

Perhaps they could scare them with some nice rats instead?
Posted by:Conform!May 5, 2008 9:43:40 PMRespond ^

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