Nagging? Zap. Swearing? Zap.

New York's investigations of the Rotenberg Center.

—Photo: Larry Sultan
Mon August 20, 2007 12:00 AM PST

In 2005, Yvonne Williams, an Amtrak waitress who lives in Brooklyn, needed to get her 15-year-old bipolar son Darryl into a residential school—fast. Darryl had been hospitalized, and the Rotenberg Center was the only facility Yvonne could find that would pick him up. To an overworked mom with no car, that was the deciding factor. "It was a last-minute decision," she recalls, "but it was a decision that had to be made at that moment."

New York state has been sending troubled kids to Dr. Israel since 1976, but its citizens now comprise nearly 60 percent of the Rotenberg Center's population. This is partly a matter of supply and demand: New York has a shortage of beds for troubled kids, while Israel has a policy of accepting anybody. It is also a matter of marketing. Israel has long sought referrals from New York's school districts and psychiatric hospitals; recently, he has begun courting the criminal justice system, sending promotional materials to judges and probation officers, picking up students from New York's juvenile jails and Rikers Island.


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Sales pitches to judges, free door-to-door transportation, a "near-zero" rejection policy—all of this has helped to fuel the Rotenberg Center's rapid growth in recent years. Then, in June of 2006, a report produced by the New York State Education Department threatened to destroy the program's carefully cultivated image. A group of investigators, including three psychologists, spent five days at the Rotenberg Center and compiled a 26-page document packed with damning findings.

  • Staff shock kids for "nagging, swearing, and failing to maintain a neat appearance" and once threatened to shock a girl who sneezed and then asked for a tissue.
  • Some students must "earn" meals by not displaying certain behaviors. Otherwise they are "made to throw a predetermined caloric portion of their food into the garbage."
  • When students enter and leave the school each day, "almost all" are wearing some type of restraints, such as handcuffs or leg shackles.
  • "Students may be restrained"—on a four-point restraint board or chair—"for extensive periods of time (e.g. hours or intermittently for days)."
  • Some students are shocked while strapped to the restraint board.
  • A "majority" of employees "serving as classroom teachers" are "not certified teachers."
  • Rotenberg's marketing reps bestow presents on prospective families—"e.g. a gift bag for the family, basketball for the student."
  • Although the center has described its shock device as "approved" by the fda in its promotional materials, it "has not been approved."
  • The facility collects "comprehensive data" on behaviors it seeks to eliminate, but "there was no evidence of the collection of data on replacement or positive behaviors."
  • The facility makes no assessment of the "possible collateral effects of punishment such as depression, anxiety, and/or social withdrawal."

Israel denounced the investigators as "biased" and compiled a counter-report nearly three times the length of the original. He denied that residents go hungry, and clarified that only 20 percent of them are restrained on their way to and from school. And to the charge that shocks might hurt students' psychological well-being? "There are no negative side effects of the ged to consider," he wrote. Israel also hired lobbyists, lawyers, and Manhattan PR agent Ted Faraone (whose former clients include disgraced New York Times reporter Jayson Blair). And while the number of New Yorkers shipped off to the Rotenberg Center slowed after the report's release, the facility's total population has remained constant—thanks in part to its increased marketing efforts in Virginia.

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Comments
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How could we allow such barbarizm? I work at a facility in Texas where these same type of adult residents reside. Such cruelty to the mentally ill sould be condemned by everyone with a brain. This MD should be in a prison that provides the same the same treatment for him. Shame on the people of New York and the other states for allowig this.

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this is the outcome from the Bush "Torture" mind set. the Golog of Russia has moved to the USA

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As an adult suffering from bi-polar disease, I'm disgusted and enraged these brutal tactics are being foisted upon children: These Dark Age methods ought to be outlawed!

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I am a Licensed Professional Counselor and I'm completely shocked at this behavior. It is a chilling reminder that we have to increase the amount and quality of mental health care across the country and make other more suitable centers cost effective and available. This center's certification should be immediately suspended while a full investigation is conducted.

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As a person who knows some minor versions of these tactics to be used, I feel it is ironic that we are torturing these less fortunate children, whilst ignoring our brilliant children. Seems like a method of undermining our next generation to me.

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We are what we elect...
Sad.

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Reading this report I had to remind myself I was reading a contemporary tale, not a historical piece on the treatment of the mentally ill in the unenlightened distant past.

My heart goes out to the parents of children that are so ill that conventional treatments have not worked, or, probably more likely, have not been offered. It must be a relief for parents to find a place, even such a hellish one, to assist them. So, shame on us for not providing more support and treatment opportunities. Nonetheless, this treatment is barbaric beyond comprehension, and made worse because it is visited upon the young and most helpless. That counseling and psychotropic drugs are not even tried means that the patients in this facility are not being offered comprehensive care.

Shame on us all if we do not close this facility down. ASAP.

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What about the parents who

What about the parents who DON’T have severely mentally ill children and are just such crappy people they "like" these things being done to their kids?

I am a survivor of a like "school," and I ask you to remember, these kids are not allowed to challenge the judgment they are mentally ill, let alone so mentally ill they need residential care. All you have as proof of these kids’ illness is this horrible organization and the parents that support its assertions

You should recognize that the disorders these kids are "diagnosed" with are not scientifically verifiable; they are said to be present merely because a shrink “sees” "symptoms" of them. As you can imagine, a disease whose presence is determined on "spectral evidence" can be projected onto anyone, particularly a kid from a dysfunctional home, which in will have the effect of making a kid dysfunctional also.

Its time to stop pathologizing kids. Your heart should go out to the helpless KIDS not the parents, who have their hands dirty in this.

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The tactics described herein are contrary to the professional ethics of the field of applied behavior analysis. This does not represent what 98% of practitioners use or approve of.

There are, however, individuals w/severe developmental disablities who engage in dangerous forms of self-injurious behavior: head-banging, skin-gouging, eye-gouging, and others. These people MIGHT benefit from some use of aversive techniques if and only if a complete analysis of the behavior has been conducted (including ruling out medical and environmental conditions that might be causal).

I have seen people bang their heads w/suffcient force to kill or cause severe damage if left unchecked. I have not seen the use of shock in these situations. I am not sure if it would have done any good, although it seemed inhumane to be unable to assess it.

In any case, shcok and food w/holding should NEVER be used for "nagging, swearing" and so on.

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One of the most disturbing things I've read was posted on the Judge Rotenberg website regarding possible reasons to send your child there. These include AAD and.... Post Traumatic Stress Disorder.

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I have posted an extensive response to Ms. Gonnerman's article under the main article at http://motherjones.com/news/feature/2007/09/school_of_shock.html. And for a fully formatted version of my response to Ms.Gonnerman's article, please see http://www.judgerc.org/ResponsetoGonnermanArticle.pdf
Matthew L. Israel, Ph.D.
Executive Director
Judge Rotenberg Educational Center

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This place needs to be shut down, "like right now"! It doesn't make any kind of sense, to me to treat people like animals. Where are these peoples families to have their family members going threw these conditions? Is the world going mad? Pointing the finger at the people who condone this kind of treatment, won't solve the problem. Bringing down the house, will make my heart happy. Shame on the Rotenberge Center, and all it's staff. Shame!!!!

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I want Mother Jones to come out and tell us pointblank whether or not they stand behind this story. If abuses are indeed occurring, then we need to get to the bottom of it and hold those responsible accountable. As expected, Matthew Israel has written a comprehensive rebuttal and his points need to be addressed as well. This is a terribly sensitive subject and should be handled accordingly. Mother Jones is not Fox News and hopefully doesn't resort to sensationalism. It did not, however, prevent them from prominently displaying my comment because I mentioned that I attempted to contact Arlo through the Guthrie Center to ask if he'd look into the matter. The simple fact is that I don't trust government officials to do what is right when money is involved. I'd rather appeal to a proven activist who'll get the straight facts and act accordingly. This matter should remain on the table until the truth is revealed. That's the least we can do for these kids and their parents who live with this daily.

Peace,
Clay

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I have a son who is bi-polar/manic-depressive. I would NEVER allow him to be treated in this manner. It requires patience, love and a supportive mental health team to achieve good results. Dr. Israel should be jailed for treating any child in this manner. How is it this center is allowed to keep practising?

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If Matthew Israel is using electric shock only in cases where children are engaging in self mutilation, then he needs to publically defend each case and each instance to the American people and explain why he believes more peaceful methods wouldn't have worked. On the other hand, if he has ever used electric shock in even one instance for purposes of behavior modification, discipline or punishment, as I suspect is really the case, then he should be drawn and quartered. I want the Rotenberg Center opened up like a book and investigated top to bottom. The thought of these kids being made to carry the very impliment of their torture in a backpack on their backs is too much to bear. I demand full disclosure.

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thank you clay!!!

thank you clay!!!

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It isn't bad enough the quacks are drugging babies under two years old for predisposition schizophrenia but they continue to abuse and torture thousands of children to try to train them like robots. They implant poisonous drugs and chips and monitor every move the individual makes and then hide the happenings like "sudden death" from the public. I am ashamed of our society and it's cruel and abusive punishment and most of all their "treatment"!

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Interesting parallel between this pain-producing electrical device and the device used for "electroconvulsive therapy" (ECT) also known as electroshock, which is electricity to the brain inducing a convulsion: Neither device has been approved by the Food & Drug Administration! That's right, the electroshock device is still a "Class 3" device that has not been tested and approved for safety and efficacy by the FDA, which has avoided the controversy. In other words, this pain shock and electroshock are both unapproved... and amount to human experimentation, in addition to their other human rights violations. - David Oaks, Director, MindFreedom, for more info see http://www.mindfreedom.org

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I worked at this school for a few years, and have seen the type of kids and adults that have sought treatment there. I have watched the faculty work tirelessly to pick up a child; day and nite for emergency treatment; when other facilities turned them away; Or when the parents have no where else to turn. I have also seen much progress in the students and at no time; does this school try to hide or uncomplicate the treatment. It is severe; yes, but these are the most severe cases of destructive behaviors, I have seen; Not only are the students a danger to themselves but they are a danger to others almost on a minute to minute basis; the use of adverses are part of a treament plan to change the behavior of these destructive patterns and to allow the "person" to accept the consenquences of their behaviors; the notion that some clients cannot be taught to behave better because of the way they are; is not giving these students any hope or will at all to get better. To say that we should just forget the behaviors and hope they go away is just not common sense, and for the most part dangerous.
I have seen students change over a time; in miraculous ways. To understand all of this is to really understand and grasp the type of students we are talking about; a lot of these clients are turned away at other facilities even hospitals; they are given massive amounts of drugs on a daily basis; just to keep them calm; In my opinion and from what I have seen that is much more abusive. One student actually tried to bite a workers nose off; simply because he wanted too. One student actually ran toward a plate glass window; just because and luckily because she was wearing a helmet; she wasn't beheaded, One student actually projectile vomits at will; and one student pulls her hair out with flesh and all, all of these students were administered adversives and now they are trained not to exhibit those behaviors that may danger themselves or others. With remarked improvement; Sometimes, drastic measures, mean drastic treatments. They follow a treatment plan geared toward their individual needs and likes and dislikes. If they behave according to their treatment plan they are rewarded minute by minute or daily, depending.
They know if they don't follow their treatment plan that there are consequences and so they follow it as best they can. Noone in my prescence as ever "tortured" a student like it has been said. These direct care workers should be commended for taking care of these students. Just try to imagine a child with autism, retardation; ADHD, and aggression for instance, (which is not uncommon at the school) How does one take care of them and why not have qualified people to oversee that care. There are lots of parents, that you could talk to that have their loved ones at this school; with remarkable results.
The group homes that they live are top-notch, beautifully decorated and well staffed; at least when I was there. The students got nothing but the best treatment. Dr. Israel is someone that has seen it all; and that accepts all students; no matter what. There is something to be said about that. He does not marvel at someone's shortcomings but rather uses his education and background to help these students. The staff is very dedicated and I have not seen any abuse in the time I was there. I am a parent of 2 healthy children. I couldn't imagine, how grateful I would be, if I found such a place.

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I have a son that suffers from Bipolar and Asperger and we wuld never ever treat him like a dog. This is animal behavior used in the most inhumane way. As a matter of fact, I wouldn't allow my dog Daisy to go there and I certainly hope parents find a better way to help kids in that area and put this man out of business. If there is a petition to sign to stop him please post it on this site so we can help. Again I ask America, why are things like this allowed? Is our government protecting our special children or did the bottom line come first.

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It's nice to know you can breed then pass your lot off to such capable hands. No one ever mentioned the second part: you have to CARE for your litter as well.

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As someone who works in the court system in NYS and in Juvenile Justice..we do have a shortage of beds and judges and law guardians do not do their research on the facilities. It doesn't suprise me in the least that we sent so many children there.

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I worked at JRC for almost 2 years. I've seen the good, the bad, the ugly...all under the same roof, and extending to almost every residence I supervised. I saw everything from corruption to torture. Yes, a school collecting Millions $$$ in different states' funds to deprive children of clothing, entertainment, and food. The head honcho, mentioned in the above article, uses that money to accumulate his wealth in properties, all of which are listed as being his, meaning under his name, and not under the Judge Rotenberg Center. Maybe his culture plays into it, since most are running this country, and do whatever they please. Let's get to an example of how to become a real-estate guru (20-30+ residences), using a non-profit organization to accumulate your wealth. The following are estimates, and can probably be found out because they're state funds provided by states sending these students to JRC. When I was there, I was given a figure of $200,000 per student coming from NY, and that can range up to $300,000+, depending on if the student needs staff 1-1, 2-1 with him/her at all times. A conservative estimate per additional staff needed to a student is $100,000 per year....but staff will never earn more than $40,000 per year working full-time with various students, so there's profit right here. When states are footing the bill, organizations love to charge $$$. This is ridiculous, since most of the time, these students never have a staff 1-1 with them 24 hrs./day because JRC is known for understaffing houses by all those who work there. Now, you take a house with 4 bedrooms, double-bunk beds, or 2 beds per room, and that adds up to 8 students. Take the 8 students and multiply that by $200,000 (minimum) = $1.6 million dollars. Next, you go out house hunting, and you find a run-down home, or foreclosed homes for about $100,000-$300,000. Next, you renovate/furnish the house up to desired operating condition...beautiful furniture, nice art, wired with cameras, mics, video equipment, etc. You just made out with a top-of-the-line, fully furnished house for yourself, after using it a few years in the program, and you throw the remaining $1.3 million into the program. So, since you're making out in Real-Estate, you decide to take a cut in pay, even though you still get an annual Salary to accompany your Jewish lifestyle. ;) In addition, with the remaining money ($1.3 million), you deprive students of clothing, force them to eat foods they don't like, or put them on portions, and then you purposefully put students into situations to break their contracts, at the last minute, so that you can prevent them from participating in any kind of social activities (ex: movies, trips, etc.). There's no oversight over how money's spent, how much is spent on each student, or where the money's ultimately going. That school is run by the seat of its pants...literally. Parents are manipulated into believing that all's well, when their lower-functioning son/daughter can't express himself/herself when being tortured, deprived, or ignored. This self-righteous master of deception lives the ultimate lifestyle...real-estate, $$$, the ability to manipulate employees, and free will to torture students. From my experience supervising many of the residences, as needed, they always put the least amount of staff necessary to a house to avoid having to employ all of its staff. Many times, this left staff at risk of becoming frustrated and abusing students, or causing students to notice this and attempting to attack staff. Many times, we used JRC’s intranet site to post our concerns/opinions, but they were either ignored and never posted for others to see, or you were looked at as a threat to the "status quo". Let's get into aversives... I have never in my life seen the torture that goes on in this school. Many times, I would personally stand in front of a camera when I suspected that a student was going to exhibit a behavior so that I wouldn't have to administer a GED (shock). Many times, I felt guilt, pity, or shame for being a part of this system, which derives its profit from the misery of others. Yes, it's said that parents have to give permission to go on GEDs (Graduated Electronic Devices), and that the judge also has to approve the treatment, but those kids are the ones ultimately being tortured. If I had to be on those devices, and was administered more than 1 per day for ridiculous JRC socially-unacceptable behaviors (ex: nagging, failure to raise my hand to speak out in class), I would have gone insane and killed someone. There have been students receiving up to 50+ more/day. I'm surprised that many of those kids actually tolerate such cruel form of torture. I feel for them because on many occasions, when I had to rotate their GEDs on an hourly basis, I noticed scars that were months old, and marks that would remain with them, possibly, for the rest of their lives. These marks were actual burns from this device, which is powered by a battery (12v, 24, and even 36v), and lasts for 2 seconds. I administered one to myself in training just to see what it would be like to be giving them to the students. The 12v alone will bring a tear to your eye, even if you don’t flinch, and leaves a red burn mark…imagine a 24v, or even a 36v device. These GEDs can either be placed on your arms, around your waist, on your lower legs, in the center of a special shoes, on a board from which you can't remove your hand, or even in a glove. There are artists at the school who build these devices, and are constantly trying to come up with new methods under Mr. Torture’s approval to get the most aversive effect from its administration. By the way, I won't get into the countless times staff grab the wrong device on their belt, and zap an innocent kid...many times off camera, or out of view of cameras, therefore couldn't be proved unless someone else saw it. I caught a supervisor once covering for another staff under him, and even denying it happened to protect the staff, but what about the innocent student? This happens all the time... The problem is that many times, as you see in pictures, one staff is given multiple devices for multiple students, and in the moment, when a behavior is taking place, staff's trying to administer the GED right away, therefore grabbing the wrong device, and not taking time to check whether it's the offending student's device. There are also people working in the video department that are there for editing. I'm sure they can make things disappear when they want them to. I needed the video once to prove my innocence on something I said during my shift, and when I asked about the video, they said that they didn't have it anywhere. All residences are rigged with cameras, and microphones....everything you say and do is monitored, and recorded. So, how does the video disappear, unless it suits the people making it disappear? I guess when the powers that be want to make you look guilty of something...they know how to get away with it. Why do you need video editors when the video at this place, and all residences, should never be manipulated in order to protect students, and staff when situations arise? You would only need video editors if you want to be manipulating video...common sense. In the end, These people who work there (staff or EE's) are encouraged to write nice letters to all participating agencies associated with them, the parents, etc...all in order to keep their jobs, and the school open. There are many things I could go on about, but if they found out who I was, I would be legally responsible, since they make us sign papers, as they do all employees, to never say what goes on there, to avoid a lawsuit , and prosecution against us. However, being one of God's own, human laws don't apply to me, especially when it concerns inhumane treatment. I'm here to motivate, and teach people on how to fight against laws, policies, and procedures of unethical human beings who deceive people to make $$$.

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I am Matthew Slaff’s grandmother. I am 95 years old, very much capable of speaking for myself and my family, and capable of speaking out against injustices done to people who are handicapped. Matthew goes to Judge Rotenberg Center.

Matthew had been in and out of hospitals and was unresponsive to positive reinforcements and only became worse from the medications he received. Finally, despite all attempts to keep him safe, he put his head through a spike and spent months in a hospital and had surgery to close his head. Judge Rotenberg Center in Massachusetts was the only place that was willing to take him from the hospital where he had spent more than five months. JRC is the only place where he has had a comfortable life for himself. Matthew would not be alive if it were not for JRC.

Matthew and children with problems like his who could not be helped in any other way, and who are now at Judge Rotenberg Center and doing very well, will certainly die as others have when they left JRC.

Our family is very happy with the life Matthew has at JRC and he tells us he is happy too. He travels with his family, goes out on day trips regularly with his school, and calls me on the telephone a few times a week and I speak to him from my home in New York City. I often visit him with other family members. We could never imagine unfortunate people like Matthew could have such a wonderful place to stay.

Those who have not had a child like ours should not talk about “Our Children” or presume to understand. To the person that has written this horribly biased article I say: You have never lived with our children nor studied their conditions. THESE ARE NOT YOUR CHILDREN! Your deliberate sensationalized misrepresentation of Judge Rotenberg Center is false, possibly for your own greed. If these children are hurt because of your statements, you will need to live with your own conscience because other children have died when they left JRC. You know there has been no other treatment for them that has worked and that is why each case has been through an impartial court hearing that has determined that they must have this treatment.

To that same person who writes this article I say: JRC has been open for our unannounced family visits in the many years Matthew has been a resident there, and all the members of our family visit him frequently and regularly. My children and grandchildren who surround and care for Matthew and support his needs are trained New York State Licensed specialists in the field. Matthew’s sister, my granddaughter, Dr. Ilana Slaff, is a physician and psychiatrist with a specialty in autism. His aunt, Dr. Phyllis Klein, has specialized in the treatment and care of non-verbal multiply-handicapped children and adults since before Matthew and his identical twin brother, Stuart, were born. The boys were treated in early childhood at Columbia University where his aunt studied.

They have had the best of care we could get for them. My daughter Lorraine and her husband Myron have traveled and stayed in Europe for treatments to help their twin sons. They would have gone around the world for them; they would have gone anywhere for them and they did, and they continue to do so.

Matthew’s identical twin brother Stuart has a similar problem, and to our misfortune he has steadily regressed as his behaviors deteriorated over time, despite every intervention that has been available in New York City where he lives. He is currently in an acute care hospital in New York City in diapers after bolting into street traffic—we have begged New York State to have him transferred to JRC where his brother is safe and happy.

It is tragic that Stuart and many other children with similar problems, whose families have been desperate to help their children, are denied this life-saving treatment because it is not available in New York State. Many haven’t survived. I worry each night that Stuart could die a horrible death because he does not understand that his self-destructive and dangerous behaviors could kill him.

From Matthew’s and Stuart’s distraught grandmother

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You deserve to die you evil,

You deserve to die you evil, 95 year old bitch. My girlfreind was in a "school" like this, maybe your grandkid is so nuts he puts his head through spikes for no reason or maybe your kids are so nuts they drive him to it.

It doesn't matter..this center doesn't just IMPRISON head-spiking kids, it takes kids with "ADD" and PTSD..that's to say kids with "disorders" that don't exist, perhaps exist rarely but are diagnosed often--overdiagnosed, or have disorders that shouldn't be treated with electrocution!! There is no excuse for electrocuting a kid to "treat" "ADD" or PTSD!!!!

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REGARDING A DISTORTED PIECE OF WRITING AND OVERT OMISSION OF FACTS, CLEARLY BIASED TO SENSATIONALIZE FOR PERSONAL PROFIT AND GAIN — WITHOUT REGARD TO THE FAMILIES WHO GIVE OF THEIR LIVES, AND TO THE INDIVIDUALS WHO GIVE OF THEIR HEART, TO CARE FOR THESE VERY SPECIAL NEEDS HANDICAPPED CHILDREN.

I am a speech and language pathologist and audiologist who entered my profession before the birth of my handicapped identical twin nephews Matthew and Stuart, and have worked more than 30 years with special needs children and adults.

We must not dilute the issue.
We must be certain that a given treatment of last resort for a given condition is made available to those identified who require it.

In the case of a self-mutilating, self-blinding, child with a compulsive, self injurious behavior--SIB as it is known in the medical community—where all other interventions have failed (medical, behavioral, chemical, physical, etc.) we must utilize the treatment of last resort. We cannot allow that child to blind himself, cannibalize his own body parts, or excoriate himself to death.

I know of no one who has worked with my sister’s identical twin sons Matthew and Stuart, or has known the inexhaustible sufferings of our family, that has voiced opposition to the use of aversive interventions -- the only therapy that has kept my nephew Matthew alive. On the contrary, they emphatically supported these interventions.

There are syndromes in which an individual will compulsively eat off their own fingers (Lesch-Nyhan syndrome for example) — and even when restrained they will chew off their own lips, rip out their own fingernails or even pull their own intestines out of their rectum. The professional nomenclature defines stereotypic movement disorder with the sub-class of severe self-injurious behavior (SIB), obsessive-compulsive behavior, and oppositional defiant disorder. Although not commonly known to the general public, there is legitimate, documented, unbiased, medical information available about these conditions and syndromes and their comorbidity.

Some individuals with these rare, but known conditions, like my identical twin nephews Matthew and Stuart, will engage in acts so horrific they are incomprehensive to people like ourselves.

Repeatedly, my nephew Matthew smashed his head into sharp pointed or spiked objects, and finally, strong enough at the age of 16 years, he successfully impaled his head on a sharp point and split it open—necessitating a 5-1/2 months hospital stay at Lenox Hill Hospital in New York City. He was kept barely conscious on multiple drugs and guarded 24 hours a day one-to-one, and yet he re-split his head smashing it directly on the wound and requiring re-suturing. He managed to run into the isolation room of a patient with a deadly contagious disease. And a teacher sent to his room refused to return after just one brief interaction with him—when he grabbed her head and attempted to slam it into the corner of a wall. Although he could be discharged after surgery to repair the gaping hole in his head, no one would take him in fear of his self-mutilating and deadly behaviors, and he languished in Lenox Hill Hospital those many months. My sister, Matthew’s mother, was asked by New York State to sign away her son Matthew's right to an education because New York State had no place for him. She refused to do so. Her husband, Matthew’s father, feared for the loss of the family home when he was told by the insurance company that they would no longer pay for Matthew’s hospitalization.

Matthew had no education—he had no life. On the contrary, the adverse effects of the psychotropic medications he was forced to take—the writhing movements that he endured—distorting his mouth, face, body, and limb, caused him to become completely unintelligible. He had been a verbal child, but for years he could not tell us his pain as the drug-induced dyskenias contorted his mouth and face. Our family members watched his tortured body and suffered with him. All of us in this family have traveled the agonizing course of waiting every moment of the day and night for one of my sister Lorraine’s, tormented and frantic telephone calls.

As a professional and academician who has worked with special needs individuals more that 30 years, rarely have I encountered such monstrous self-mutilation, debilitation and suffering at one’s own hands —in the educational or medical arena.

Yet there is an intervention, a two second surface skin shock inhibits the behavior, and reverses years of physical and mental damage, destruction and self-mutilation. Matthew entered Judge Rotenberg Center in Massachusetts where such intervention is utilized to save a child from chewing off their own fingers or tongue, or blinding or excoriating themselves to death, a “treatment of last resort” when all other interventions have failed.

The families of our children may, for decades night and day experience the fear of their child’s torment—and the fear of their child’s death—a slow and tortured death by self-mutilation like J.V., or an immediate death by riding a bicycle into a moving truck like K.B. Fear through the night and every waking moment of the sound of your child’s head crashing through a pane of glass, or in Matthew’s case—a sharp, pointed spike-like projection.

It is a matter of public record that J.V. (whose obituary appeared in the New York Times) and K. B. are two children who died when they were withdrawn from this type of therapeutic intervention. K. B. was returned to a New York State facility and drove his bicycle off the grounds into the back of a moving vehicle. J. V. compulsively ripped his flesh to the bone losing the use of his legs and confined to a wheelchair the last year of his life, when his infections could no longer be medically controlled, as the New York Times reported it, he died at the age of about 25. If the therapy is not available to those who desperately need it, others will die just like they did.

No one would take Matthew until he was accepted at Judge Rotenberg Center (JRC) where he now resides. When all other treatments have failed, JRC uses a COURT ORDERED, PARENTAL APPROVED, 2-second skin shock therapy, which Matthew has received to control his life-threatening, compulsive self-injurious behaviors (SIB) condition. Matthew has remained not only drug free in his current residence at JRC, he can speak clearly because his twisted and tormenting body movements gradually subsided as he was weaned from the drugs. Shortly before this posting Matthew called, as he freely and frequently does, to talk about his interests and activities. He enjoys his hobbies, dinosaur collecting, birds, his telescope, reading, visits and vacations with his family. Family members frequently visit Matthew on unannounced visits and are always welcome. Matthew participates in life and tells us he is happy and safe.

Stuart, Matthew’s identical twin, resides in a residence within New York State. Skin-shock therapy is legal in New York State, but it is unavailable, (which is why New York State sent Matthew to Judge Rotenberg Center in Massachusetts). Because of the medications Stuart is forced to take to "control" his behaviors, he new suffers some of the movement disorders his twin brother Matthew no longer has. These same "drug cocktails", none of which have been approved for use in these conditions, have not altered Stuart’s behaviors, but have only complicated them. Although never having been an epileptic, the medications have altered his brain so that his seizure threshold has been lowered and he has dropped unexpectedly in the New York City subway system -- we were called to an emergency room during a 12-inch snow storm recently because he was unconscious. Despite the medications, Stuart has had multiple and dangerous New York State approved aversive “take-down” procedures. He has been handcuffed and removed from his residence by the police, and has had 5 emergency psychiatric hospitalizations in the past few years. On one occasion he attempted to hold someone's hand over an open flame--almost setting the two of them on fire.

We know Matthew is alive, enjoying his life, and safe. He tells us he is happy. We have pleaded with New York State officials to have Stuart placed with his brother at Judge Rotenberg Center. As of this writing, Stuart, (who once worked a full-time job in the community, but has deteriorated in a “positive only” program), is at this moment, in diapers, in an acute care psychiatric facility in New York for having bolted into city street traffic because (as he tells us) a string on his favorite chair was displaced. We know Stuart can die at any time, and Stuart tells us he is miserable. Stuart, like his identical twin brother Matthew, needs the same COURT APPROVED life-supporting skin shock therapy.

We would like both boys to be with us. We would like both of them to have a safe and happy life.

There is no issue. There is no controversy. No one who has not experienced or witnessed the "Sophie's Choice" brought upon our family should presume to decide for us, or to even consider withholding the only treatment that has kept one of our twins alive.

Dr. Phyllis Klein

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LOL I've seen Phyllis Klein's response before somewhere. The only difference is the very beginning and the very end, the rest of it is word for word. Its the JRC party piece which has been used for nearly a year and resides on the JRC site. http://www.judgerotenbergcenter.org/Klein_VV.pdf

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The end bit of the old pdf --This very morning, as I write this letter, I learn from my sister Lorraine, mother of Matthew and Stuart, that she has just received a letter from New York State to the effect that Matthew, our 35 year old child who is mentally handicapped and unable to speak for himself, is no longer a resident of New
York so his Medicaid has been terminated. And, she has been told that he is not a resident of Massachusetts and therefore cannot receive Medicaid in Massachusetts. He was born and lives in the United States, but is a resident of no state. Or, more specifically, no state wants to fund his support." So whaddya do then? a: Didya dig deep into your own family's well paid professionally doctors' pockets to keep him there, b: didya find somewhere else where the state would take over the responsibility and payments, c: didya use Matt Israel's money and lawyers to gently persuade the odd rep or judge to make sure the school of shock stayed in within the boundaries of the law, though not in the boudaries of decency. HUH? Do tell!

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--the same COURT APPROVED life-supporting skin shock therapy-- Well you should know the old saying, the law is an ass and donkeys are no good at science. What you REALLY need in order to sound convincing is SCIENCE BASED EVIDENCE that skin shock therapy works which unfortunately for you doesn't exist.

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--This very morning, as I write this letter, I learn from my sister Lorraine -- GREAT start! Very dramatic. You should consider taking up writing as an alternative career. --Court Approved LIFE-SUPPORTING skin shock therapy -- FANTASTIC! You've a natural talent for fiction.

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Isn't it weird how your own troubles take a back seat when you here things like this.......

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i work at jrc. you are completely ignorant to what goes on at this life saving haven for these children. you honestly would not last one day working wiht these kids

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"i work at jrc. you are completely ignorant to what goes on at this life saving haven for these children. you honestly would not last one day working wiht these kids
Posted by: staff on September 4, 2007 11:09:55 AM " PLEASE GIVE SCIENTIFIC EVIDENCE OF SAFETY AND SHOCKING CHILDREN TO READERS, SOME OF WHOM DO WORK WITH KIDS WITH THESE PROBLEMS, TOGETHER WITH HARD SCIENTIFIC EVIDENCE OF HOW JRC IS "LIFE SAVING". CRUELTY IS NEVER THERAPY.

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I can understand how desperate parents turn to a program where they finally get acceptance and I think it is so sad that those are the lengths that they have to go to get help. Obviously we have a empty space where Mental Health facilities have had constant cutbacks. Even if there is some kind of behavior modification what kind of emotional damage and scarring is that kind of torture going to leave on a child.

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I am the parent of a now 14yr. old son diagnosed with severe autism. I am very active in the local autism community and am a co-founder of the a school for children with disabling communication disorders, most of whom have autism. I have seen it all. So, don't tell me I don't know what it's like. I am outraged by what I have read. I am in no position to talk about other conditions(though I am just as sickened about this kind of care for the other children), but where children with autism are concerned, I am an authority. And I will tell you right now, that despite the good doctor Slaff's assertions, there is no way that this can be considered appropriate standard of care in autism, particularly in severe autism. At most, it is a band-aid which alleviates the immediate symptoms of the disorder and provides relief for the caretakers --all of which is admittedly important. But is this really the best we can do?

To start, when, when, when, are we going to stop calling autism a behavioral disorder? (Once and for all, autism is a highly complex neurological disorder often with significant co-morbidity that presents differently in each individual diagnosed with it.)

Anyone who knows anything about autism can tell you that kids with autism have distorted sensory perception. Some kids are overreactive to pain, others are underreactive. In fact, some autistic children hurt themselves in an effort to
compensate for sensory deprivation problems. Moreover, how does anyone know what any individual autistic child's perception is of the shock they receive. Your perception of pain isn't remotely akin to theirs.

I find it more than a little telling telling that the kids seem to stay in residential treatment. They don't go for treatment, get better and then go home to their families. And the measure of success seems to be the control of the unwanted behavior. Viewed as positive therapeutic outcome, that's just plain absurd.

To illustrate: As it happens I am also the wife of an all ivy-league trained dermatologist who teaches at one of these universities. I can tell you that my husband has often recounted really sad stories of patients who mutilate themselves, because they perceive severe, chronic itching -- so they scratch and they scratch and they scratch cutting themselves to ribbons. Many of these patients, my husband tells me, ultimately are shown to have no physical condition that would account for their itchiness. Now imagine if these people were shocked every time they scratched themselves. Maybe you could get them to stop scratching, but it wouldn't alter the extent of their suffering. Moreover, for these folks we know that there are no underlying medical problems, because my husband and his colleagues are diligently evaluating them -- desperately looking for something they can treat. Sadly, this rarely is the case in autism. Autism is viewed as a behavioral disorder requiring, of course, of behavioral fix.

But autism is not a behavioral disorder.

We now know so much more about autism. The body of knowledge is growing exponentially, but unfortunately, this does not seem to be affecting systems of care. We are locked into the same old paradigm amd the reults are tragic.

For inspiration I look to the lives and work of two very different women. The first is Soma Mukhopadhyay whose pioneering efforts beginning with her own son is proving that people with severe autism are so much more than they appear to be. Her classically autistic son, is now a published author who writes eloquently about the experience of being a fully cognizant mind trapped in an autistic and out of control body.

The other is Dr. Temple Grandin who has largely treated her own autism. Once herself a young behaviorist, it is apparent when you read her books, that that once she got over her youthful admiration for the great Dr. Skinner, she got over it good. She clearly has little use for him and I am sure that she must be devastated that his principles seem to have become the standard for autism treatment in the U.S. I know I am. It's time to change the paradigm.

We can do better. We need treatment programs that support sensory, motor, cognitive and emotional development. They don't do that at JRC. After all apparently they believe that since the kids are autistic, they are beyond hope of anything other than behavioral improvement. If taxpayers are spending in excess of $200,000 a year on these kids they have a right to expect that the children are getting humane, compassionate, and comprehensive care.

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To the poor parent of the autistic child; while you and only you know the trauma you and child go through on a daily basis. The students at this school; do much more than just scratch and scratch and yes, scratch until they bleed. The students have multiple things wrong with them, not just autisim, some have 6-8 disorders. I have seen students that pull their hair out constantly with clumps of flesh in their hands afterward; The same student after being on JRC's treament plan doesn't exhibit any of this kind of behavior anymore. And I haven't worked in the school since the early 90's. Whether or not you believe that the school doesn't have a treatment plan that you would choose for your child. Other parents believe and have seen the amazing result. Its funny; you mention that imagine being reprimanded for scratching 100 times a day; Yes,lets imagine that; and then to understand that; if they don;'t do the behaviors over and over again; and are self-injurious they quickly learn with the reward system that the school has in place; that they adapt while on the GED and figure out that if I don't do this behavior then I get rewarded. Most of them; that I have seen are transformed wonderfully. What people have to understand is that the program works and if you don't know about the school; you would get this imagine that its a torture chamber like a lot of the other blogs. It clearly is not; anyone thats curious should make an appointment to see the school firsthand. They love to have visitors.
I can't say enough good things about the school and the great service they provide to the parents and students.

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To the above mother: While autism is a complex disorder and there are multiple abnormalities found in persons with autism including in neurotransmitters and there is also evidence for immune dysfunction there are behavioral manifestations. In addition, my brothers have behaviors that are rare and extremely dangerous. My brothers do not just have autism. They have a life-threatening impulse control disorder. It is rare for me to recommend the Judge Rotenberg Center to any patient, but my brothers need that level of care to survive. My daughter does not by the way. Behavioral skin shock should only be used in persons who have life threatening behaviors that are unresponsive to other treatments. While the rapid prompt method may be helpful with communication impairments, it has not been investigated in controlled trials, and in particular it has not been researched as a treatment for behavioral disorders which may occur in autism. The best clinically investigated educational treatment with controlled trials in autism in applied behavior analysis. Lovaas was able to obtain an average 20 point IQ gain. Behavioral skin shock has also been clinically investigated in multiple controlled trials with baseline data. There are over 100 peer reviewed articles on the subject. Peer reviewed articles on positive behavioral techniques show more moderate results including that some subjects do not obtain even and 80% suppression of behavior. When there is a life-threatening behavior we need 100% suppression to save the person's life. However, for most persons with behavioral problems positive behavior techniques are adequate. However, I find really heartbreaking is that my family went through so much trauma and you are judging us and marginalizing us; my brother was waking up at all hours of the night and having to be rushed to the hospital after banging his head. We did not know if he could survive. My parents could never sleep comfortably. Now he is safe and happy, going on trips with us to Canada, enjoying zoos and astronomy and looking at his bird books, and until his identical twin was having severe life-threatening behaviors which started at his adult residence we all had peace.

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I also want to add to the above that my parents tried anything they could think of. They even took my brothers to a doctor in Europe to try to help them and my grandfather spent half his life savings to fund the trip!

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Also, J.V. a former student at the Judge Rotenberg Center had chronic scratching behavior. While controlled at the program, when he came back to New York in three years at the age of 26 he died secondary to infections due to his behavior. The positive behavior program in NY did not save his life.

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ILANA SLAFF - PSYCHIATRIST. A woman who shows just shows how unintelligent and barbaric psychiatrists can be. It's people like Ilana Slaff who give 'medicine' a really appalling name.

http://scienceblogs.com/corpuscallosum/2007/03/arch_gen_psychiatry_tortu...

"Conclusions Ill treatment during captivity, such as psychological manipulations, humiliating treatment, and forced stress positions, does not seem to be substantially different from physical torture in terms of the severity of mental suffering they cause, the underlying mechanism of traumatic stress, and their long-term psychological outcome. Thus, these procedures do amount to torture, thereby lending support to their prohibition by international law."

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It is disgusting to me that in this country of money, priviledge and all those positive attributes, our children are always at the bottom of the "CARE LIST". Why is that? Most of us are parents, why does this country feel their children are not important enough to fight for?
Someone is making plenty of money and cannot be bothered by a few "bad kids" to even investigate!

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I worked briefly for jrc and was and still am horrified by what went on there. It is disgraceful that in todays society are not only allowed but also funded by our government. It is deplorable.

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My beautiful daughter once had a "severe reputation" but since her sensory and movement difficulties have been accommodated she holds a parttime job, takes part in the normal routines and activities of the community, and has a sense of satisfaction about her life. All kids and adults need people who care about them, the chance to have relationships with other people and a champion or ally in troubled times; these unfortunate kids have none of these. Israel has been in this "field" for a long time; he has access if he wishes to the best practices and state-of-the-art positive interventions, and the accommodations that can make the difference between keeping it together and melting down. But he chooses not to use these methods; instead, he sets kids up using shackles and shock devices and then kicks them when they're down -- probably because, when you come right down to it, he doesn't much like kids. I wonder what happens to the poor kid with Tourette's or other involuntary movement/speech disorder who's strapped to a shock device? We can't just say "How awful -- but they're not my kids!" These ARE our kids, they belong to all of us, and we are responsible for their welfare. It is our responsibility as a society to close JRC and put Israel in jail. We have to do it for the sake of all of us. So let's write letters, contact our State and Federal representatives, design and disseminate bumper stickers, and come up with other ideas to get the job done.

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I am appalled! This is a disgrace. The Rotenburg Center should be shut down and those individuals who share in this blatant show of abuse and misconduct, should have the same done to them.

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judge rotenberg center is a very bad evil place for children with disorders I used to go there and they abused alot of people there by not feeding them or shocking them with the GEDs those where punishments and many more I would walk down the hall and see someone get a shock that person screamed for mercy I had been on the GEDs so I know I how it feels to get shocked I screamed and cryed lots of times when I had received one it's just so cruel how matthew israel could perfrom such maddness why would anyone still let him do this? someone needs to put a stop to this I feel so sorry and worried for the people that still remain there sence I been there I started to hated Dr israel and his evil doings and how nasty the food was it look like Turd and dog food mixed together I been depressed there and all the sorrowness pale faces I see every day from the children I been there for 3 years those where the worst time of my life and those years I see people getting shocked and they straped me down to the four point broad is what they called it and gave me 23 shocks there and I scream and cryed all day until the next morning I was in a deep paranoid panick state and had extreme horror nightmares about that day I did nothing bad at all but called a staff stupid then that's when they punish me they wasn't surposed to do that it was on of Dr Israel sick evil deeds I told my mother shed had a talk with him about it he deny it just like everything else my mother took me out of judge roptenberg center but I was so happy but thre are still evil doings going there alot of people don't understand this place when they put there kids there I just wish I can convinsed there parents not to bring them there I just don't want them to suffer there like I did the people that's still there are crying for HELP and they still need NOW JRC Is a disgrace and discrimination of human kind Dr Israel is a very evil,cruel,lying, careless,hipocrite,selffish money making man all he does when I was there he just stays in his office drank his coffe and read the newspaper like any old man would do I hardy ever seen the old man maybe like once every several months but I have other important news that he used to do drugs in he past in his late 20s and 30s I know alot more about matthew israel that some people don't that's all for now but I will write more about the Truth about Judge roteneberg center and the evil doings of that GAY SON OF A BITCH MATTHEW L. ISRAEL From: I Speak The Truth About The Horrors Of The Untold Story Of Judge Rotenberg Center

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How long is it going to take to shut this damn place down? when is those people going to be free from abuse and starvation to matthew irsrael they are like animals to him he doesnt give a RATTASS WHAT HAPPENS TO THOSE PEOPLE IN THE JUDGE ROTENEBRG CENTER I USED TO GO THERE I KNOW HOW HE IS ALL HE WANTS IS HIS GREED, MONEY, AND SELFISH ASS NEEDS HOW LONG IS THESE PEOPLE GOING TO LET THIS [deleted] DO THIS AS LONG AS HES GETTING PAID FOR HIS CRIMES HE DOES NOT CARE ABOUT ANY THING ELSE SEE IF JUDGE ROTENBERG CENTER WAS IN CALIFORNIA THEY WOULD HAD SHUT THE PLACE DOWN YEARS AGO BECAUSE IT'S A LAW TO HAVE GED TREATMENT THERE SO WHEN IS IT GOING TO BE A LAW IN MASS? HE NEED'S TO STOP HIS MADDNESS SHUT THE PLACE DOWN AND BURN IN [deleted]ING HELL AND LET SATAN PUNISH HIM SEE HOW HE LIKES IT

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A former employee as I am. Disgruntled,yes; however, this place is ridiculous. I am sure that Matthew Israel doesn't give two flying craps about those students. Why doesn't someone come and ask him what specific behaviors any named student exhibits? Why doesn't someone come one day and then come a month later and see the staff turnover rate(80%)? And he is boldfaced lying when he states that students are never denied food. There have been several instances when students state that they are hungry only to be pinpointed for talking out...or if it is in their specific program and they ask for food more than once they could receive a GED for this. The food program is disgusting. They (at one point) were forcing the students to go on a full vegan diet, with no choices at all as to what they could eat. It appeared to me at times that Dr. Israel (because he is whacked)was trying to create the perfect robotic students. If students exhibit behaviors those that are on contingent food programs, if they break contracts, are forced to eat COLD mashed potatoes, Cold spinach, and Cold diced unseasoned chicken, with a garnish of liver powder....EEEEEEEEEW..........I would love to see anyone choose to eat this. SHUT IT DOWN!!!!!!!!!!!!!!!!!!!!!!

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I noticed that this blog is 99.9% anti-JRC. I urge all parents who have children at JRC who benefit from this life-saving treatment as well as current/former students who benefit from this life-saving treatment come forward and try to set the story strait. I do worn you however, that when you post pro-JRC/pro-Mathew Israel comments on this blog, that you will probably be greated with tons of derogatory responses as you understand and support a treatment that sadly, just about the entire world opposes. I urge you not to be intimidated by such derogatory greetings and that you don't reply to such greetings.

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I must point out that this article by Jennifer Gonnerman is a one sided hatchet job that gives great emphasis to just about anything negative you can think of about JRC and Matthew Israel and gives zero emphasis on all of the positives that far outweigh all the negatives. Ms. Gonnerman deliberately designed this article so that it would anger the readers. She set the tone of the article right from the first sentence, opening with “Rob Santana awoke terrified.” In response to this unfair article, many people lashed out at the school. The very few parents and former student whom had the courage to come on here and tell their story were quickly greeted with snide remarks and viewed in the least favorable light possible. Early on, a former student had the courage to come on here and tell his story. In return, several people made snide remarks towards him, made fun of him because his spelling wasn’t perfect, and one person even assertively suggested that this former student was really a staff person hired by Matthew Israel to pose as a former student whom benefitted from the treatment. If I were to read this article with no previous knowledge of JRC or Matthew Israel, I would lash out at the school and I would certainly waist no time in lashing out at those who dare say anything positive about JRC or Matthew Israel. In June of 2006, Geraldo Rivera, host of the FOX newscast, Geraldo at Large, did a story on JRC, and although in his closing summation, Mr. Rivera expressed his displeasure for the treatment, he equally presented both sides of the issue, which is what Ms. Gonnerman should have done, but did not. I believe that both Rob Santana and Antwone both deserve a fair amount of attention, however, those who support and benefitted from the treatment deserved equal amount of attention, and that did not happen. Those who so intently oppose this treatment either do not have the ability to have an open mind or have established their unwillingness to have an open mind. It is possible to have an open mind and in the end, still disapprove of the treatment. Those who read this article and wish to post negative comments about the school should first take the time to look at the school’s website “www.judgerc.org.”

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