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“Flu-like symptoms” my ass.

The last couple of days have been a horror story. On Thursday afternoon, out of the blue, I started having intense lower back pain. Then it got worse. By late evening it was bad enough that I took some morphine, which had very little effect. It got worse through my sleepless night. More morphine at 2 am, then more again at 7 am on Friday morning. At that point, the pain was so excruciating that I wanted to head over to our local ER, but unfortunately Friday was the day we were scheduled to go to LA to have my Hickman port installed for the stem cell transplant. Marian, thank God, insisted on us doing the right thing: driving to LA regardless and getting help there. (On the bright side, Good Friday traffic was light.)

I was practically writhing on the floor for the hour after we got there. Eventually I was taken back to prep, and the doctor tried IV morphine. It had only a minor effect. Then he gave me several IV infusions of Dilaudid, and that did the trick. I was still in pain, but it was tolerable.

Unfortunately, our timing was bad. The Dilaudid was wearing off just as the surgery to install the port began, and they could give me only a limited additional amount until it was over. So the surgery was a horror story too, even though the placement of the port is basically pretty painless.

Long story short, all of this might have been the result of my Neupogen injections, which make my bones work overtime. But my doctors all agreed that although back pain is a common effect of Neupogen, pain of my level was very unusual. Alternatively, all of this could have been due to a pathological fracture in my lower back. A CAT scan ruled that out, thank goodness. So we still don’t know for sure what was going on. But after a very bad day and night, apparently the Dilaudid was the right painkiller, and I woke up in the hospital Saturday morning feeling surprisingly good. I would have given long odds against that Friday night.

So….very mysterious. And for me personally, a whole new definition of pain. Hopefully it won’t return.

Need a silver lining? As bad as it all was, it was apparently a sign that the Neupogen is working. Routine bloodwork shows that my white cell count is high and getting higher. Hooray! That’s what we’re hoping for.

On Monday we start putting the Hickman port to use. I will be up at City of Hope for 2-5 days while they extract stem cells and then process them and freeze them. If I’m producing lots of stem cells, they’ll finish up in a couple of days. If I’m producing a weak stream of stem cells, it may take as long as five days. Cross your fingers.

WHO DOESN’T LOVE A POSITIVE STORY—OR TWO?

“Great journalism really does make a difference in this world: it can even save kids.”

That’s what a civil rights lawyer wrote to Julia Lurie, the day after her major investigation into a psychiatric hospital chain that uses foster children as “cash cows” published, letting her know he was using her findings that same day in a hearing to keep a child out of one of the facilities we investigated.

That’s awesome. As is the fact that Julia, who spent a full year reporting this challenging story, promptly heard from a Senate committee that will use her work in their own investigation of Universal Health Services. There’s no doubt her revelations will continue to have a big impact in the months and years to come.

Like another story about Mother Jones’ real-world impact.

This one, a multiyear investigation, published in 2021, exposed conditions in sugar work camps in the Dominican Republic owned by Central Romana—the conglomerate behind brands like C&H and Domino, whose product ends up in our Hershey bars and other sweets. A year ago, the Biden administration banned sugar imports from Central Romana. And just recently, we learned of a previously undisclosed investigation from the Department of Homeland Security, looking into working conditions at Central Romana. How big of a deal is this?

“This could be the first time a corporation would be held criminally liable for forced labor in their own supply chains,” according to a retired special agent we talked to.

Wow.

And it is only because Mother Jones is funded primarily by donations from readers that we can mount ambitious, yearlong—or more—investigations like these two stories that are making waves.

About that: It’s unfathomably hard in the news business right now, and we came up about $28,000 short during our recent fall fundraising campaign. We simply have to make that up soon to avoid falling further behind than can be made up for, or needing to somehow trim $1 million from our budget, like happened last year.

If you can, please support the reporting you get from Mother Jones—that exists to make a difference, not a profit—with a donation of any amount today. We need more donations than normal to come in from this specific blurb to help close our funding gap before it gets any bigger.

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WHO DOESN’T LOVE A POSITIVE STORY—OR TWO?

“Great journalism really does make a difference in this world: it can even save kids.”

That’s what a civil rights lawyer wrote to Julia Lurie, the day after her major investigation into a psychiatric hospital chain that uses foster children as “cash cows” published, letting her know he was using her findings that same day in a hearing to keep a child out of one of the facilities we investigated.

That’s awesome. As is the fact that Julia, who spent a full year reporting this challenging story, promptly heard from a Senate committee that will use her work in their own investigation of Universal Health Services. There’s no doubt her revelations will continue to have a big impact in the months and years to come.

Like another story about Mother Jones’ real-world impact.

This one, a multiyear investigation, published in 2021, exposed conditions in sugar work camps in the Dominican Republic owned by Central Romana—the conglomerate behind brands like C&H and Domino, whose product ends up in our Hershey bars and other sweets. A year ago, the Biden administration banned sugar imports from Central Romana. And just recently, we learned of a previously undisclosed investigation from the Department of Homeland Security, looking into working conditions at Central Romana. How big of a deal is this?

“This could be the first time a corporation would be held criminally liable for forced labor in their own supply chains,” according to a retired special agent we talked to.

Wow.

And it is only because Mother Jones is funded primarily by donations from readers that we can mount ambitious, yearlong—or more—investigations like these two stories that are making waves.

About that: It’s unfathomably hard in the news business right now, and we came up about $28,000 short during our recent fall fundraising campaign. We simply have to make that up soon to avoid falling further behind than can be made up for, or needing to somehow trim $1 million from our budget, like happened last year.

If you can, please support the reporting you get from Mother Jones—that exists to make a difference, not a profit—with a donation of any amount today. We need more donations than normal to come in from this specific blurb to help close our funding gap before it gets any bigger.

payment methods

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