By an amazing coincidence, half an hour after I griped about not being allowed to see my test results, they popped up on my screen. The squeaky wheel gets the grease, I guess. Unfortunately, the news is disappointing:

Instead of stabilizing at around 0.5, my M-protein level took a big jump up to 0.67. That’s too bad. I had hoped that the Darzalex by itself would be effective since it has no side effects.¹ But this means that either I’ll have to start up again on the dex or else add something else to the mix. I’ll find out when I see my oncologist in a couple of weeks.

What I’d really like to do is to try starting up the dex again, but using it only once a month on the same day as the rest of the chemo. Unfortunately, my doctor is not fond of “trying” things. He prefers to precisely follow the treatment used in the clinical tests of the Darzalex. But I’ll ask anyway and see what he says. This is the first time that I’ve thought I’d like to get an opinion from a multiple myeloma specialist, but I’m not even sure how to go about that.

¹As opposed to the dex, which saps my energy and ruins my sleep. It’s now been several months since I quit the dex, and it’s amazing how much better I feel.

IT'S NOT THAT WE'RE SCREWED WITHOUT TRUMP:

"It's that we're screwed with or without him if we can't show the public that what we do matters for the long term," writes Mother Jones CEO Monika Bauerlein as she kicks off our drive to raise $350,000 in donations from readers by July 17.

This is a big one for us. It's our first time asking for an outpouring of support since screams of FAKE NEWS and so much of what Trump stood for made everything we do so visceral. Like most newsrooms, we face incredibly hard budget realities, and it's unnerving needing to raise big money when traffic is down.

So, as we ask you to consider supporting our team's journalism, we thought we'd slow down and check in about where Mother Jones is and where we're going after the chaotic last several years. This comparatively slow moment is also an urgent one for Mother Jones: You can read more in "Slow News Is Good News," and if you're able to, please support our team's hard-hitting journalism and help us reach our big $350,000 goal with a donation today.

payment methods

IT'S NOT THAT WE'RE SCREWED WITHOUT TRUMP:

"It's that we're screwed with or without him if we can't show the public that what we do matters for the long term," writes Mother Jones CEO Monika Bauerlein as she kicks off our drive to raise $350,000 in donations from readers by July 17.

This is a big one for us. So, as we ask you to consider supporting our team's journalism, we thought we'd slow down and check in about where Mother Jones is and where we're going after the chaotic last several years. This comparatively slow moment is also an urgent one for Mother Jones: You can read more in "Slow News Is Good News," and if you're able to, please support our team's hard-hitting journalism and help us reach our big $350,000 goal with a donation today.

payment methods

We Recommend

Latest

Sign up for our free newsletter

Subscribe to the Mother Jones Daily to have our top stories delivered directly to your inbox.

Get our award-winning magazine

Save big on a full year of investigations, ideas, and insights.

Subscribe

Support our journalism

Help Mother Jones' reporters dig deep with a tax-deductible donation.

Donate