Health Update

By an amazing coincidence, half an hour after I griped about not being allowed to see my test results, they popped up on my screen. The squeaky wheel gets the grease, I guess. Unfortunately, the news is disappointing:

Instead of stabilizing at around 0.5, my M-protein level took a big jump up to 0.67. That’s too bad. I had hoped that the Darzalex by itself would be effective since it has no side effects.¹ But this means that either I’ll have to start up again on the dex or else add something else to the mix. I’ll find out when I see my oncologist in a couple of weeks.

What I’d really like to do is to try starting up the dex again, but using it only once a month on the same day as the rest of the chemo. Unfortunately, my doctor is not fond of “trying” things. He prefers to precisely follow the treatment used in the clinical tests of the Darzalex. But I’ll ask anyway and see what he says. This is the first time that I’ve thought I’d like to get an opinion from a multiple myeloma specialist, but I’m not even sure how to go about that.

¹As opposed to the dex, which saps my energy and ruins my sleep. It’s now been several months since I quit the dex, and it’s amazing how much better I feel.

$500,000 MATCHING GIFT

In 2014, before Donald Trump announced his run for president, we knew we had to do something different to address the fundamental challenge facing journalism: how hard-hitting reporting that can hold the powerful accountable can survive as the bottom falls out of the news business.

Being a nonprofit, we started planning The Moment for Mother Jones: A special campaign to raise $25 million for key investments to make Mother Jones the strongest watchdog it can be. Five years later, readers have stepped up and contributed an astonishing $23 million in gifts and future pledges. This is an incredible statement from the Mother Jones community in the face of the huge threats—both economic and political—against the free press.

Read more about The Moment and see what we've been able to accomplish thanks to readers' incredible generosity so far, and please join them today. Your gift will be matched dollar for dollar, up to $500,000 total, during this critical moment for journalism.

We Recommend

Latest

Sign up for our newsletters

Subscribe and we'll send Mother Jones straight to your inbox.

Get our award-winning magazine

Save big on a full year of investigations, ideas, and insights.

Subscribe

Support our journalism

Help Mother Jones' reporters dig deep with a tax-deductible donation.

Donate

We have a new comment system! We are now using Coral, from Vox Media, for comments on all new articles. We'd love your feedback.