Health Update

By an amazing coincidence, half an hour after I griped about not being allowed to see my test results, they popped up on my screen. The squeaky wheel gets the grease, I guess. Unfortunately, the news is disappointing:

Instead of stabilizing at around 0.5, my M-protein level took a big jump up to 0.67. That’s too bad. I had hoped that the Darzalex by itself would be effective since it has no side effects.¹ But this means that either I’ll have to start up again on the dex or else add something else to the mix. I’ll find out when I see my oncologist in a couple of weeks.

What I’d really like to do is to try starting up the dex again, but using it only once a month on the same day as the rest of the chemo. Unfortunately, my doctor is not fond of “trying” things. He prefers to precisely follow the treatment used in the clinical tests of the Darzalex. But I’ll ask anyway and see what he says. This is the first time that I’ve thought I’d like to get an opinion from a multiple myeloma specialist, but I’m not even sure how to go about that.

¹As opposed to the dex, which saps my energy and ruins my sleep. It’s now been several months since I quit the dex, and it’s amazing how much better I feel.

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THE BIG PICTURE

You expect the big picture, and it's our job at Mother Jones to give it to you. And right now, so many of the troubles we face are the making not of a virus, but of the quest for profit, political or economic (and not just from the man in the White House who could have offered leadership and comfort but instead gave us bleach).

In "News Is Just Like Waste Management," we unpack what the coronavirus crisis has meant for journalism, including Mother Jones’, and how we can rise to the challenge. If you're able to, this is a critical moment to support our nonprofit journalism with a donation: We've scoured our budget and made the cuts we can without impairing our mission, and we hope to raise $400,000 from our community of online readers to help keep our big reporting projects going because this extraordinary pandemic-plus-election year is no time to pull back.

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