Wanted: the Ryan White of Stem Cell Protests

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This is something that my colleagues and I have been puzzling over for the last couple of days: why didn’t the sick and the disabled march on Washington?

The question inevitably leads to a few really bad jokes, but let’s move on. Despite any inherent problems in mobilizing the population at hand, it could have been done, and maybe, were Christopher Reeves still alive, it would have been done.

But so far as I can tell, neither his foundation, nor any of the big disabled/disease groups did any real organizing in advance of the vote. Even ACT-UP was muted.

Which is a shame, since everybody knew there was vote coming and everybody knew it would likely pass and everybody knew the president would veto and everybody knew that there wouldn’t be enough votes to override the veto.

Some portion of that equation might have changed had the disabled, the sick, their friends and family (and, while we’re at it, the scientific community) filled the Mall and the Capitol steps.

So why didn’t they? I can think of a few reasons:

Funding. Disease organizations and/or non-profit foundations are afraid of losing their federal funding and/or donor support.

Fiefdoms. All these organizations compete with each other for public attention and money. They don’t have experience working together. Nor, too often, are they inclined to do so.

Lack of a point person/group. It’s not a pure party issue, the net roots community didn’t do much on this front, and with Reeves dead, there’s as yet been no one to step into his breach.

(Note to larger left: Does this sound familiar?)

There’s no doubt that the Republicans feared the notion of a huge protest—why do you think they held the override vote so quickly? Now maybe the Democratic Party is happy to have this issue for the fall elections. But it is an issue that transcends party lines and interests. If Bush is going to trot out the “snowflake babies” at every turn, I can only hope that somebody puts a real face on the millions of Americans that are hurt by impeding valid scientific inquiry. That’s the real way to “race for a cure.”

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THE TRUTH...

is the first thing despots go after. An unwavering commitment to it is probably what draws you to Mother Jones' journalism. And as we're seeing in the US and the world around, authoritarians seek to poison the discourse and the way we relate to each other because they can't stand people coming together around a shared sense of the truth—it's a huge threat to them.

Which is also a pretty great way to describe Mother Jones' mission: People coming together around the truth to hold power accountable.

And right now, we need to raise about $400,000 from our online readers over the next two months to hit our annual goal and make good on that mission. Read more about the information war we find ourselves in and how people-powered, independent reporting can and must rise to the challenge—and please support our team's truth-telling journalism with a donation if you can right now.

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