Wanted: the Ryan White of Stem Cell Protests

Fight disinformation: Sign up for the free Mother Jones Daily newsletter and follow the news that matters.


This is something that my colleagues and I have been puzzling over for the last couple of days: why didn’t the sick and the disabled march on Washington?

The question inevitably leads to a few really bad jokes, but let’s move on. Despite any inherent problems in mobilizing the population at hand, it could have been done, and maybe, were Christopher Reeves still alive, it would have been done.

But so far as I can tell, neither his foundation, nor any of the big disabled/disease groups did any real organizing in advance of the vote. Even ACT-UP was muted.

Which is a shame, since everybody knew there was vote coming and everybody knew it would likely pass and everybody knew the president would veto and everybody knew that there wouldn’t be enough votes to override the veto.

Some portion of that equation might have changed had the disabled, the sick, their friends and family (and, while we’re at it, the scientific community) filled the Mall and the Capitol steps.

So why didn’t they? I can think of a few reasons:

Funding. Disease organizations and/or non-profit foundations are afraid of losing their federal funding and/or donor support.

Fiefdoms. All these organizations compete with each other for public attention and money. They don’t have experience working together. Nor, too often, are they inclined to do so.

Lack of a point person/group. It’s not a pure party issue, the net roots community didn’t do much on this front, and with Reeves dead, there’s as yet been no one to step into his breach.

(Note to larger left: Does this sound familiar?)

There’s no doubt that the Republicans feared the notion of a huge protest—why do you think they held the override vote so quickly? Now maybe the Democratic Party is happy to have this issue for the fall elections. But it is an issue that transcends party lines and interests. If Bush is going to trot out the “snowflake babies” at every turn, I can only hope that somebody puts a real face on the millions of Americans that are hurt by impeding valid scientific inquiry. That’s the real way to “race for a cure.”

WE'LL BE BLUNT:

We need to start raising significantly more in donations from our online community of readers, especially from those who read Mother Jones regularly but have never decided to pitch in because you figured others always will. We also need long-time and new donors, everyone, to keep showing up for us.

In "It's Not a Crisis. This Is the New Normal," we explain, as matter-of-factly as we can, what exactly our finances look like, how brutal it is to sustain quality journalism right now, what makes Mother Jones different than most of the news out there, and why support from readers is the only thing that keeps us going. Despite the challenges, we're optimistic we can increase the share of online readers who decide to donate—starting with hitting an ambitious $300,000 goal in just three weeks to make sure we can finish our fiscal year break-even in the coming months.

Please learn more about how Mother Jones works and our 47-year history of doing nonprofit journalism that you don't find elsewhere—and help us do it with a donation if you can. We've already cut expenses and hitting our online goal is critical right now.

payment methods

WE'LL BE BLUNT

We need to start raising significantly more in donations from our online community of readers, especially from those who read Mother Jones regularly but have never decided to pitch in because you figured others always will. We also need long-time and new donors, everyone, to keep showing up for us.

In "It's Not a Crisis. This Is the New Normal," we explain, as matter-of-factly as we can, what exactly our finances look like, how brutal it is to sustain quality journalism right now, what makes Mother Jones different than most of the news out there, and why support from readers is the only thing that keeps us going. Despite the challenges, we're optimistic we can increase the share of online readers who decide to donate—starting with hitting an ambitious $300,000 goal in just three weeks to make sure we can finish our fiscal year break-even in the coming months.

Please learn more about how Mother Jones works and our 47-year history of doing nonprofit journalism that you don't find elsewhere—and help us do it with a donation if you can. We've already cut expenses and hitting our online goal is critical right now.

payment methods

We Recommend

Latest

Sign up for our free newsletter

Subscribe to the Mother Jones Daily to have our top stories delivered directly to your inbox.

Get our award-winning magazine

Save big on a full year of investigations, ideas, and insights.

Subscribe

Support our journalism

Help Mother Jones' reporters dig deep with a tax-deductible donation.

Donate