Your DNA = $$$

Fight disinformation: Sign up for the free Mother Jones Daily newsletter and follow the news that matters.


It’s been a great couple years for the personal genomics company 23andMe: an Oprah appearance, a Invention of the Year accolade from Time magazine. But despite all the good press, last month the news turned sour: it was confirmed that 23andMe had laid off employees due to the economic downturn. “This was a very difficult decision,” a company statement read, “but one that we felt was necessary to achieve 23andMe’s long-term business development goals and maintain our strength in the industry.”

Which begs the question: What exactly are those “long-term business development goals” for 23andMe, and indeed for the nascent personal genomics industry as a whole?

The genomics companies claim their goal to help us live longer, better lives; to understand what diseases we’re predisposed to; and to better prepare for the future. But as Shannon Brownlee, author of the award-winning book Overtreated: Why Too Much Medicine Is Making Us Sicker and Poorer, writes in the November/December print issue of Mother Jones, this selling point isn’t what these companies are actually after. What they really want is your genetic data for large-scale research; in their hands, that data can be sold to researchers and Big Pharma to develop new medications—and for much more than peddling personal tests. “We are the broker,” 23andMe cofounder Linda Avey tells Brownlee. “We make the connection between [the drug firms] and the individuals.”

Consumers can plunk down as much as $68,500 on one of these tests. But as Brownlee points out, in many instances the data they get back isn’t even all that useful—or accurate. The personal genomics field is still in its infancy; even 23andMe mentions in its genetic reports that its findings shouldn’t be used by doctors for prescriptions. Actual, useful data is years, even decades away, she writes, though that won’t stop these services from cashing in on your DNA in the meantime.

MOTHER JONES NEEDS YOUR HELP

We have about a $170,000 funding gap and less than a week to go in our hugely important First $500,000 fundraising campaign that ends Saturday. We urgently need your help, and a lot of help, so we can pay for the one-of-a-kind journalism you get from us.

Learn more in “Less Dreading, More Doing,” where we lay out this wild moment and how we can keep charging hard for you. And please help if you can: $5, $50, or $500—every gift from every person truly matters right now.

payment methods

MOTHER JONES NEEDS YOUR HELP

We have about a $170,000 funding gap and less than a week to go in our hugely important First $500,000 fundraising campaign that ends Saturday. We urgently need your help, and a lot of help, so we can pay for the one-of-a-kind journalism you get from us.

Learn more in “Less Dreading, More Doing,” where we lay out this wild moment and how we can keep charging hard for you. And please help if you can: $5, $50, or $500—every gift from every person truly matters right now.

payment methods

We Recommend

Latest

Sign up for our free newsletter

Subscribe to the Mother Jones Daily to have our top stories delivered directly to your inbox.

Get our award-winning magazine

Save big on a full year of investigations, ideas, and insights.

Subscribe

Support our journalism

Help Mother Jones' reporters dig deep with a tax-deductible donation.

Donate